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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Seizures

A MyEpilepsyTeam Member asked a question 💭
Lawrenceburg, TN

How do you know when they are having one?

May 30
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A MyEpilepsyTeam Member

It's dif per person, but after 51 and half yrs of having them, I myself know what is going on with me and my condition I have, there are some I know about and happen, I have general seizures, grand mal,petti mal, nocturnal ones and abscent seizures, for the most part I know what happened, but there's a few of them I have no idea and I wonder if I did have one, but over the years they are more stable than they were before, I am ok with that and so is my doc, a plus in my opinion and the medical field etc is making a progress in trying to find a cure for, my opinion here

May 30
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I’ve had seizures for over 30 years and I’ve never had a clue when I had a seizure either without someone telling me.

May 31
A MyEpilepsyTeam Member

I don't know when I have a seizure(s). Either my wife or stepdaughter tell me when I have had one, so can tell my doctors( primary & neurologist) my next appointment.

May 30
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I tell people that if I’m having a seizure and they don’t believe it to pinch me. I feel nothing when having a seizure so when I don’t react to the pinch I’m obviously out (having a seizure).

May 30
A MyEpilepsyTeam Member

I can tell when one is coming on but it's been 45 years for me

May 30

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