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Changing From Brand To Generic

A MyEpilepsyTeam Member asked a question 💭
Brisbane, AU

Ok so I'm stuck in a bit of a annoying situation, I've been on brand Topiramate (Topamax) for going on 26 years and it works the issue is the government has stupidly decided to take it off the PBS and I may not be able to get it much longer.

There is the option to switch to a generic version but what one I don't know yet and how it will work I'm not sure. My point is has anyone else had to do this?

June 3
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A MyEpilepsyTeam Member

In the state's,
the insurance company's dictate what they and will, & will not pay for, and if you don't have good insurance you mines as well forget about fighting for the brand that you prefer !!!

July 21 (edited)
A MyEpilepsyTeam Member

Hi, I’ve been on the generic version since the companies patent ran out and opened up the way for the same but cheaper version of this medicine.

June 3
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, yes i have had this happen many times before and it still happens to me now until i have the pharmacist call my neurologist and she has to give an authorization for brand name. When a doctor gives prescriptions, they will ask for brand name. But when the order comes to the pharmacist, the insurance company will always tell the pharmacist to use generic unless the doctor puts in a request for brand name. There is a difference between the two. In some medications and with some people, it depends on that individual's seizures.

June 3
A MyEpilepsyTeam Member

I had to have my neurologist write to Drs and pharmacy and somewhere else she mentioned cause if I don't get brand name Keppra I'm usually found on the floor and if I don't get the Clobazam I could slap you in seconds (unknowingly) or be in a staring competition with the wall til I come out of it or my mom shouts my name otherwise I just twitch after twitch until again I'm on the floor.

June 6
A MyEpilepsyTeam Member

I had to do it a while back. Went to my Neurologist and we discussed it that's when he suggested, Levetiracetam. Now I'm taking 3 tablets daily ER 500mg (3 capsules)It has bee working very well for me since about 2016

June 5

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