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Most Of My Seizures Occur To Me In My Bed While I'm Sleeping At Night. Is This More Danger To My Health?

A MyEpilepsyTeam Member asked a question 💭
St. Thomas, VI
July 1
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A MyEpilepsyTeam Member

Most of mine occur at night. I wake up with them, though. I am afraid of dying with them, but I have to sleep, so what can I do? I have walked into traffic and forgotten how to drive while I was driving, before having the right medicine, so where am I safest? I don't know. Good question. I hope you find peace with this problem.

July 1
A MyEpilepsyTeam Member

It's dif per person, I would suggest asking your doc about this ❓ and go from there, my opinion

July 4
A MyEpilepsyTeam Member

I feel it’s more safe seizururing in bed, than seizuring when up and moving.

July 1
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , That’s hard to answer cause it’s one that could be answered possibly. First, let me tell you, I’m 45 & have had seizures since the 2nd grade. Growing up I had petit mal seizures, now known as absence seizures, but now I have simple & complex partial seizures & the nocturnal seizures where I have the seizures in my sleep. Most but not all of my seizures occur in my sleep. There’s times I might have a seizure in my sleep & not know it unless I notice something is odd when I wake up & come out of it or if my Mom or stepdad witnesses it & I still live at home with them. A few years ago, for the first time ever during a seizure, I fell off my bed & woke up finding myself sliding my finger across the side of the bed & then there was the time that I had a seizure in my sleep & walked to my bathroom & back to bed. Since you’re asking this question, you might have heard about SUDEP, aka Sudden Unexpected Death in Epilepsy. You can do research on that if you want but that can possibly occur from a seizure when someone is sleeping. You can go to www.dannydid.org & read about a little boy named Danny who passed away from SUDEP & while on the site, if you want to try & apply for a grant for an Epilepsy Device, click on the box in the top right corner & then click where it says “Epilepsy Devices” & then on the next page scroll down a little & you’ll see where it says something about applying for a grant for one of the Epilepsy Devices that you’ll see listed as you scroll down a little further but read carefully because the grant can only be used on certain devices. I hope this info helps a little. Your friend in Texas, Becky

Advancing Awareness of Epilepsy & SUDEP - The Danny Did Foundation
Advancing Awareness of Epilepsy & SUDEP - The Danny Did Foundation
July 1
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