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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Advice Please! Have You Ever Reduced Medication Against The Advice Of Your Doctors?

A MyEpilepsyTeam Member asked a question 💭
Berlin Köpenick, DE

Since January my 10yo had been taking clobazam, keppra, lacosamide, & valproate. In February her neurologist started her on lamotrigine to replace the valproate after she gained 50% of her original weight, constantly thought about food and became unmotivated and inactive. Also I worried about her developing diabetes on top of the epilepsy. I kept pestering them about reducing her meds but nothing was done about it because for the 1st time her EEGs were looking good.

Meanwhile my daughter was… read more

August 17
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I might have when one of my medications was causing uncontrollable eye movements

August 21
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, ramble on! That's how we help each other. I would continue to listen the doctor but always have questions during the visit. It will be tough controlling seizures for a while because she will continue to grow, and seizures will change. I was diagnosed at 18 months and was changing seizures as i grew older. I would also follow the doctor and remove her from Valporic. It will damage the liver and give mood swings. It wasn't fun when i was about her age. Keep a diary on how she is feeling before and after taking medication. Here is a website to use the next time you have questions about medications, https://www.drugs.com/
https://www.epilepsy.com/what-is-epilepsy

August 18
A MyEpilepsyTeam Member

I follow the advice of a medical professional. Would not feel comfortable going against it

August 17
A MyEpilepsyTeam Member

I would get a second opinion.

August 17
A MyEpilepsyTeam Member

Generally, the advice is not to do this. IMO if you can get a second opinion. I'm not sure what's going on but if she has only been on meds for eight months then there is a chance she hasn't adjusted yet. The other thing is she's on 4 different meds, so this is most likely drawing everything out. The average adjustment time is around 3 months but can be as long as 6-12 months.

August 17

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