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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

If The Medical Field Or Your Doc Brings To You Say A Dif Treatment Or Med Are You Ok With Doing It, I Usually Am And I Ask A Few Questions

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

I besides my condition of epilepsy I have and other experiences also with the medical field etc have not had a time where it was something we didn't discuss about or a alternative method of treatment for me and it worked out, meds as well, I feel like a actual patient and person since my last doc, I don't have nothing against the medical field etc, but what are your thoughts here? Some places are dif, like a hospital and their staff, and your own personal doc my opinion,

September 5
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A MyEpilepsyTeam Member

They stopped giving me different medications after my brain operation in 2017. They played with the medication levels, but never changed the medication since day one in 2014. The cocktail of Phenytoin, Divalproex and Clonazepam levels was the only things they changed.

September 6
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I’ve taken every medication and had every surgery my neurologist has mentioned

September 5
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A MyEpilepsyTeam Member

I have tried the medications my doctors have recommended to varying degrees of affect. I am now on a new cocktail which I hope works.

September 6
A MyEpilepsyTeam Member

If it’s my doctor then ok. But if it’s someone I don’t know then I would have to do some research. I’ve been in the ER a number of times and they always used to change my meds usually up the dosage or add a new one. Now there’s a note on my chart saying no med changes.

September 5
A MyEpilepsyTeam Member

I know the reasoning of changing my medication. It’s always been changed , because I was on my max dose of medication and my seizures may of worsen. Then there is my refractory Epilepsy ( Resistance to the medication ) , which makes it hard for the meds to work 100% .

September 5
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