IIn 2022 , I had my DBS done . I also have Refractory Epilepsy ( resistant to AED meds ) too.
Had me do a 6 day Inpatient EEG first. See if my seizure locations have changed . After that I was scheduled for the DBS implant.

Other than the stitches on the side of my head and the two mounts on my head
( the Leads/wire were inserted ) , where 2 devils horns could have of been ( that how it looked to me ) placed , there was no major after affect.

It took 8 plus months for my head to fully heal . The Stimulator worked well at reducing my seizures down to half the amount I use to have . So , I do still have seizures. The DBS combine with my meds helps control my seizures better.

I have people from the MN University College , that is studying me with the DBS. I don’t know if all University Colleges are doing this or not.
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@A MyEpilepsyTeam Member , Another team member who has had the deep brain surgery I believe is @A MyEpilepsyTeam Member . She hasn’t had a seizure in a few years now. But keep in mind, what works for one person may not always work for another but it’s always helpful to get feedback on something like this that you might be considering. I wish you the best of luck. Prayers you’ll be able to find the best treatment for you. Your friend in Texas, Becky

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Thanks for your story, Randy . It's important to remind myself (although sad) that no matter what, my seizures aren't going to go away.

I wouldn't be working with a specific research program, but I would be among a small-ish group to have DBS and RNS implanted and operating at the same time, so my data might be useful.

@A MyEpilepsyTeam Member
I believe team member @A MyEpilepsyTeam Member has a DBS. I have an RNS.

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You’re welcome Katherine Lonergram