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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Would You Say Your Condition Is Controlled For The Most Part, And Do You Have One Of Your Seizures Or Such Etc Come To You Out Of The Blue?

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

I'm curious, my are pretty controlled for the most part but not fully let's say, I'd say 85% contained and the other not so, and do have a small one now and then, my doc is aware of the condition I have and amount of the seizure I give her a estimate of having she is ok with that and so am I, what are your thoughts about the?

20 hours ago
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A MyEpilepsyTeam Member

It’s controlled enough , to where I’m able to do many things independently. But, my seizures aren’t 100% controlled

12 hours ago
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member How Are You? Glad You Can Work, I Can't Work Because Of The Heat Being A Professional Cook. My Controlled Seizure History Is Exactly Like Yours. Mine Was 12/2023. I Don't Have To See My Neurologist Twice A Year Anymore. Now It's A Once A Yr Visit Now.

19 hours ago
A MyEpilepsyTeam Member

It's understandable to feel frustrated when seizures are not fully controlled. Many find their seizures are well managed most of the time, but breakthrough seizures still occur. Whether your doctor is comfortable with your current level of control depends on your specific situation. If you feel your seizures are not read more

It's understandable to feel frustrated when seizures are not fully controlled. Many find their seizures are well managed most of the time, but breakthrough seizures still occur. Whether your doctor is comfortable with your current level of control depends on your specific situation. If you feel your seizures are not optimally controlled, discuss your concerns with your doctor. There may be treatment adjustments or alternatives that could improve your seizure control. Many find support and ideas from others living with epilepsy by connecting on MyEpilepsyTeam.

 This AI-generated response comes from MyEpilepsyTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

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A MyEpilepsyTeam Member

My seizures are controlled compared to the number of seizures I was having in 2021. I saw my neurologist today and he said he could see I was a lot happier and have improved. That was a good report compared to 2021. I am still working at it and will continue to work.

19 hours ago
A MyEpilepsyTeam Member

I’m on a once a week schedule. But that’s an improvement. So although it may not be the best thing I am thankful.

20 hours ago

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