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? Does Our Conditions We Have Seem To Somewhat Bother You Now As When You Were Diagnosed With Or Not As Much If Any, What Are You Thoughts?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

I think it a little bit of a so called bother and concern for me, but not like at first when I didn't know what I had, I felt like like a outsider or a outcast in a way, but I don't think that way anymore and let it get to me like that and feel that neither, IT took some time to do that, but I have become used to them now when they come about to me, and are more stable than before and I am ok with that, I think that they are slowly but surely improving, I'm not complaining, yeh at first was… read more

November 16
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A MyEpilepsyTeam Member

My epilepsy has affected me. I don't know how it wouldn't in some way or another. I take each day as it comes and do my best not to worry about it.

November 18
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I never got sent to the nurses office when I had a seizure in school. My teachers must have waited them out, or chased me down the hallway ☺️

November 16
A MyEpilepsyTeam Member

It really doesn’t bother me a whole lot, except for the not driving part.

November 16
A MyEpilepsyTeam Member

I would quite often stop taking my meds because I didn’t want to be labeled as different. It would work great for anywhere up to a year and then I would get another seizure and it would be worse than prior ones. Only my closest friends knew about my condition and they would tell me if I was shaking or zoning out so I would usually have time to get somewhere safe. I can still tell u exactly what each schools nurses room looked like lol. But I was able to hide it from most ppl. And then the dr would up my dose and I was like a zombie walking around and still functioning, working, school and all. But I would get too used to that dose and would get “ break through seizures “ and again either change meds or up my dose of the old stuff. I always felt like I was just along for the ride while they played around with what they had or knew that might help me.

November 16
A MyEpilepsyTeam Member

It's understandable that an epilepsy diagnosis can feel overwhelming and scary at first. With time and learning more about your condition, many find they become more comfortable managing their symptoms. What's helped you adjust to living with epilepsy? That's great you have been able to better understand your epilepsy over Show Full Answer

It's understandable that an epilepsy diagnosis can feel overwhelming and scary at first. With time and learning more about your condition, many find they become more comfortable managing their symptoms. What's helped you adjust to living with epilepsy? That's great you have been able to better understand your epilepsy over time. It's empowering to focus on the progress you've made, while also being kind to yourself on difficult days. Having a strong support system can also make a big difference.

November 16

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A MyEpilepsyTeam Member asked a question 💭
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