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What Is The Best Way To Start Going About SSI Or Disability For Having Epilepsy With Focal Seizures?

A MyEpilepsyTeam Member asked a question 💭
Rockford, IL
December 2
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , It’s best to have a disability attorney & so I suggest you contact your local Epilepsy Foundation & ask if there’s a disability attorney that they could recommend in your area. You can look up your local Epilepsy Foundation at www.epilepsy.com. Then if they’re able to provide you a name of a disability attorney or the name of a law firm that provides one, contact the disability attorney or the law firm & discuss things with them. They’ll let you know what information they’ll need from you. I recommend you start keeping track of your seizures & any other health issues you might have. For example, I’m 46 & have had seizures since the 2nd grade but about 10 years or so ago I was diagnosed with TMJ, where I grind my teeth when I sleep & maybe other times if stressed & I go to physical therapy twice a week for that & when my jaws hurt I stop & take something for the pain & then in 2019 I began having verbal tics for some reason, where I say or holler words, names, phrases or humming or moaning noises, it’s similar to Tourette’s but not as severe & I can’t take the anxiety meds cause they bother my stomach & my regular Neurologist has me seeing a special Neurologist & he’s thinking now that my tics might have something to do with Autism Spectrum disorder & he has me seeing a counselor. But my point is that my verbal tics are more active when I’m around others & so sometimes people don’t know if it’s me talking to them or if it’s my tics. There’s tons & tons of paperwork I will warn you. You might be denied the first time but your attorney will appeal & keep appealing. I was denied twice by a letter in the mail & so I then had to do a phone hearing with a Judge, a Vocational Expert & my attorney. After that I was soon approved. Keep track of all the doctors you’ve seen & when & why. All I had to do was give my Case Manager or the attorney, the list of those doctors & maybe a little information of that & they did the rest of the footwork because they knew exactly what information they needed. I didn’t have to pay my attorney until they won my case & it came out of the money I won. My local Epilepsy Foundation gave me the name of a law firm who has a disability attorney & that’s why I recommend you see if your local Epilepsy Foundation can recommend a disability attorney. Everyone’s case is different & so some might take longer than others. Good luck. Your friend in Texas, Becky

https://www.epilepsy.com
December 2 (edited)
A MyEpilepsyTeam Member

I don't think i can help much with the advice @A MyEpilepsyTeam Member and @A MyEpilepsyTeam Member have put out. But here is a link to read; https://www.nerdwallet.com/article/investing/so...

December 3
A MyEpilepsyTeam Member

Head to your local SSA ( Social Security Administration ) . They will give forms to fill out along with a list o things they would want from you . Examples
Banking statement
your I.D. And Social Security
Documents on your Epilepsy from your Dr.s / specialists
And other things .

Once you have that you can return to the SSA for an appointment visit

December 2
A MyEpilepsyTeam Member

The best way to start applying for SSI or SSDI disability benefits for epilepsy is to gather all relevant medical documentation. Have records from all doctors familiar with your case showing how your seizures affect your ability to work. These records help prove you qualify for disability. You'll also need to provide Show Full Answer

The best way to start applying for SSI or SSDI disability benefits for epilepsy is to gather all relevant medical documentation. Have records from all doctors familiar with your case showing how your seizures affect your ability to work. These records help prove you qualify for disability. You'll also need to provide personal information like your work history and diagnosis. Be prepared to explain how epilepsy prevents you from performing previous jobs or other work. It can take persistence through potential rejections, but keep appealing.

December 2
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