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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Wonder If You Can Get A Side Effect From The Med They Give Us And Isn't Listed But May Get? And Has It Happened To You? Curious?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO
December 13
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A MyEpilepsyTeam Member

There’s always a risk of having a side effect that isn’t listed as they usually only put on ( list) the side effects that are most common. But if u type in the company name they list everything from 1% to 100% of potential side effects, so it’s easy to find out

December 14
A MyEpilepsyTeam Member

In some state can get extra help if you are under a certain amount for disability, I do or I couldn’t pay for!

December 13
A MyEpilepsyTeam Member

Keppra gave me rage bad. I have been off of it over 3 years and rage is gone.

December 13
A MyEpilepsyTeam Member

Yes, it's possible to experience side effects from anti-epileptic drugs (AEDs) that are not listed. As the search results mention, common side effects of AEDs include tiredness, dizziness, vision changes, appetite changes, and mood changes. However, some people do report unusual or unexpected side effects. For example, one Show Full Answer

Yes, it's possible to experience side effects from anti-epileptic drugs (AEDs) that are not listed. As the search results mention, common side effects of AEDs include tiredness, dizziness, vision changes, appetite changes, and mood changes. However, some people do report unusual or unexpected side effects. For example, one member shared that they cannot eat grapefruit or starfruit due to medication interactions. Alcohol also affects them differently now. So while rare, some side effects may not be included in the drug labeling. If you experience any new or concerning symptoms after starting a medication, be sure to let your doctor know right away. Working closely with your healthcare team can help manage side effects and adjust treatment if needed.

December 13
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A MyEpilepsyTeam Member

this is weird. a couple yrs after being on 400mg Dilantin a day the neuro upped it to 500mg a day. after a couple weeks every time I took a dose (am, noon, pm) I would gradually lose my voice. couldn't make a sound for about an hr. than my voice would gradually return, took me a couple days to figure out the extra 100mg of Dilantin was the only thing I was doing different so I went back to 400mg/day. after a handful of days I stopped losing my voice. my neuro said it wasn't possible, I've been on Dilantin (400mg/day) ever since without any voice problems.

December 14

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