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Anyone Else Usually Have Some Issues When You Go To The Next Step On An Increase Of Meds.
Ive been slowly increasing meds to get to where i was before. Each time i increase, i have tremors and maybe a seizure. Then im fine until the next increase. I dont remember this happening to me before.
It sounds like medication needs must be becoming stronger because you are in need of an increase. If that is the case I can see how the stronger medication or more frequent use can be causing side… read more
Do You Have Tremors Of Various Levels Even When In Seizure Free State?
I never noticed (except when using fingernail clips in recent years). And I did know that they were called tremors until the first visit by the doctors. They had me put my arms forward so they could assess the tremor level when I wasn't even noticing it. I am just curious if you have various intensity of tremors, as I do? And when they are their worst? And how bad are they at the worst?
I never experienced tremors, beyond intensity when trimming fingernails, before I went to EEG Long Term… read more
But now having to be treated with a blind cane & a wheelie walker & social worker every 2nd-3rd da = great!! But today i will get out & do thinks I want & finish off by having a coffee then go back… read more
Ok I Havent Been Eating Much I Have Been Deppresed
I make myself eat like an apple or avocado for lunch then i try to make myself eat a big dinner is that enough?
Hello, I have been told having some fruit between meals is not a bad idea. Banana’s have 100% of all the potassium a person needs for one day. Watermelon is 98% water but it is better then candy… read more
Do You Ever Just Hide Your Epilepsy For As Long As You Can?
I just moved to a new state and of course a new job. I hate explaining i have epilepsy because you just get treated differently. Also, dont feel answering questions and going over my life story.
No I don't hide anything about myself I suffer from Epilepsy seizures so people will find out anyway because I have seizures 4 to 5 times per month 🤷♀️ ohoo well it's a health condition I'm dealing… read more
Mozart Reducing Seizures
This sounds weird but i saw q bunch of scholarly articles regarding case studies of people listwning to mazart once q day. Specifically one piece in mozart ( mozart sonata two pianos in D, k448) scientists have seen the reduction in seziures of various ages but arent certain of the science as to why. im curious if anyone else has heard about this, or has tried it? I have started trying it a few days ago and i cant say anything for certain but i have noticed it help me sleep much better. And… read more
My husband read this article out to me I try to relax by listening to classical music before I go to sleep ,sadly no change in seizure frequency though
Do You Experience Vomiting Or Nausea As Part Of Your Epilepsy? (and Not Caused By Medication)
I'm interested to know if vomiting or feeling like you'd like to be sick is a known occurance linked with epileptic seizures? And if you have experience of where that might fit in the epilepsy chain? Eg. Aura, seizure, or post ictal.
I know people can be nauseous from medication so I'm only asking if it's specifically related to the seizure itself.
Look forward to replies. Thank you.
I usualy don't feel well before a seizure. Usually it just feels like a migraine. Sometimes i will have mild nausea but that almost always occurs with migraines for me. So hard to tell/ distinguish… read more
Has Anyones Seizure Triggers Changed?
Has anyone's seizure triggers changed? For example caffeine or alcohol used to not trigger you but now it does. Or it used to trigger you but now it doesn't. Same with other common triggers...I was just using it as an example.
I was just curious. Because something that is a trigger for some used to never bother me, but now I think it may be starting to sometimes as of recently. Just wondering if it's happened to anyone else.
I'm so sorry you had what must have been very frightening experience. Also, thankful God lead you safely to that cab. God blessed all that day 🙏
Auras With Epilepsy
My 9 year old son was recently diagnosed with epilepsy. He’s dealt with migraines with aura since he was 4 and been on daily migraine meds since then. They have never worked for him. He has gotten an aura/migraine every 10 days to two weeks. He had his first seizure at school last March. His neurologist gave us rescue meds and we hoped it was a one time thing. Unfortunately in August he had his second seizure that lasted so long we had to call 911.
My question is
Could his… read more
I would work directly with your neurologist on the matter. I stay in very close contact with my neurologist frequently as he is aware of the temporal lobectomy that has caused the chronic migraines to… read more
Xcopri
Has anyone put on xcopri and seen reduction in seisures ?
What are your thoughs of RNS and epilepsy surgery, are worth the pain?
Carbamazepine
I'm sorry I live in UK and the name of drugs different name. Could you tell me the names of the drugs you mentioned what are they called in Britain. Thank you
Yeah, none of the anger and aggressiveness.
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