Questions & Answers

Everyone has a different body and I'm sure different seizure warning signs but I wanted to ask what warning signs you might notice before you have one so I could compare it to mine.
Thanks
Michelle

Once I couldn't remember any of my 6 cats' names or the names of TV show hosts on shows that I watch every day. I could not remember what our bathroom looked like even though it had been remodeled 2 years ago and I use it many times each day. I could only picture it how it used to look. I could remember the details of how it used to look but I could not picture anything about the new bathroom. I knew it had been changed but not what it looked like as I lay in bed after I woke up
It is like… read more

Hi, I'm trying to tease apart the elements surrounding the stigma in order to build a strategy for fighting it. While families and romantic partners have as many different reactions as there are people with epilepsy, I'm trying to figure out useful generalizations that might be made about reactions from friends and acquaintances. All comments are appreciated!

Just wondering about your experiences with health insurance since implementation of Obamacare. Has it helped you with coverage and costs? Is it easier to get insurance, subsidized insurance or Medicaid? Can you more reliably get and pay for your mess?

For me - I don't currently qualify for a subsidy, so I pay full price for the premiums. It isn't cheap (just under $700/mo just for myself), but without Obamacare I wouldn't even be able to get insurance because of the epilepsy. And while I pay a… read more

I know I have odd behaviour when there's seizure activity like biting my arms, trying to pull my nails off and being extremely clumsy. From what I've been told because I'm unaware when it happens. But my parents told me about one I have a lot, they said its like I'm regressing
For example, this is the most recent one I had, what they told me:

I ran downstairs (which I know not to do anyway) and said "Mummy mummy! Can we go to the park today? But can I do some colouring first please?" She… read more

I've been having difficulty speaking because the wrong words come out of my mouth. Even my family is getting tired of my mistakes. I say things wrong and it makes me upset, and then it gets worse until I'm babbling incoherently. Even my family is starting to roll their eyes and talk over me like I'm not there. This is devastating...I feel useless and forgotten.

I went to vote today and those special voter machines that they have was seizures hell. As soon as I started looking at it, I felt funny. Started spacing out and could barely get through the voting. I did though. But it seemed like those specific machines were worse than even computers because the effect was almost immediate. Who all did this happen to ?

For example, after it was confirmed by my sister that I had a seizure (I was talking to her and stop mid-sentence and went silent for a period of time all of which my conscious mind was not present) with a powerful aura before it, I was angry and frustrated with myself. Of course, a flaw in my character, also makes me feel guilty for "having let down my neurologist" by having the seizure. I "sensed frustration with me by him on Tuesday" that I cannot achieve long-term seizure free status with… read more

It may be a weird question. Have any of you had parents an family constantly on top of you, like if you was a baby. The reason I ask is because my mom is constantly on top of me no matter or where I'm at an it's annoying till the point I wind up catch a seizure. She does not let me be that she acts like I'm a three year old so does my family does the same that wind up wanted to disappear.