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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Are You Frustrated With Finding Effective Treatments For Epilepsy?

By A MyEpilepsyTeam Member 168 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 146 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyEpilepsyTeam Member 72 answers

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

By A MyEpilepsyTeam Member 93 answers
12501 questions

How Many Of You Get Tingling Numb Hands Feet Legs And Arms During Or Before Seizures Or Is It Due To Meds?

A MyEpilepsyTeam Member asked a question 💭
Laughlin, NV

I get really tired in the late mornings and almost can't help myself from falling asleep sometimes it's before I have a seizure and one thing I've noticed is my hands and feet and lower arms and legs will go numb and tingle like falling aslleep with a little bit of tingling pain- I wonder how many people have this happen and if you know what it's from?

A MyEpilepsyTeam Member

My feet are continuously numb!!

June 26, 2018

Not Really Nightmares, But Bad Dreams!

A MyEpilepsyTeam Member asked a question 💭
Houston, TX

This really isn't epilepsy or seizure related but I was wondering if any of you ever had bad dreams but not nightmares. Really just dreams that are really negative. My reason for this question is because I go through this a couple of times and when I do my wife wakes me up because while sleeping I do shout or just even talk in my sleep. The last time just happened today while taking a long nap before our trip back home from our vacation tonight and I did have one where I actually thought my… read more

A MyEpilepsyTeam Member

thank you John Dufrence

December 3, 2016

During A Job Interview, Do You Need To Inform Your Employer About Your Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Hackettstown, NJ

When you are applying for a job or attending a job interview, are you informing them about your seizures or Epilepsy? Cause I believed, some employer will have second thoughts of hiring someone who have this kind of illness specially those in the medical field.

A MyEpilepsyTeam Member

When i was going for a job i always told them about my seizure troubles.Back in70s and 80s lots of people and places didnt knowmuch about epilepsy.I got some jobs then woud have a seizure ,i have… read more

November 28, 2016

Feeling Your Seizure Coming

A MyEpilepsyTeam Member asked a question 💭
San Antonio, TX

Does anyone ever feel like they're going to have a seizure not like an aura but you can just feel it lurking in the background just waiting for a slight change in mood or for you to slip up so it can come?

A MyEpilepsyTeam Member

The best lol

October 6, 2016

Does Anyone Else Get Headaches Accompanied With A Strange Vibration Type Sensation In There Ears?

A MyEpilepsyTeam Member asked a question 💭
Marion, OH

The headache seems persistent accompanied with a vibration type sensation and buzz that comes in goes in the ears. Like inside the ears. It makes all other sounds seem muffled.

A MyEpilepsyTeam Member

this happens to me all the time i get angsious when other people are around and i freeze then faint i just want to scream but am scared by everyone looking at me i never know what to do then i… read more

January 18, 2017

Does Anyone Get A Headache?

A MyEpilepsyTeam Member asked a question 💭
Crawley, UK

Sometimes I get a headaches and they feel like I've been hit round the head with a hammer, with these ones they'll only last a few minutes.

But after I've had a seizure I have a headache like I'm hungover that's how I feel and no pain killer will help and my dr won't prescribed me with anything to take for these sort headaches.

A MyEpilepsyTeam Member

The dr hasn't prescripted me with anything for when I get a bad headache for when after I've had a seuizre we keep asking them to but they keep refusing

August 27, 2017

Keppra Side Effects??

A MyEpilepsyTeam Member asked a question 💭
Wolverhampton, UK

Hi, just a question if anyone suffers from side effects of keppra and if there is a time frame before they will subside? I'm on a mixture of lamictal, zonegran and keppra. I've been on the keppra for around 4 years at a high dose 3,500mg and was advised to reduce it by my neurologist. I did this successfully by 750mg then my seizures came back so I've been upped to 3,250mg .. this was 2 months ago now and the side effects are driving me mad!! Constant nausea, vertigo, jerking of my arms (even… read more

A MyEpilepsyTeam Member

What Keppra seems to be doing to people, I have been wondering ifit is not Vagabitrin under a different name over in the States, but to me this is very useful to know, and I will certainly tell the… read more

December 1, 2016

Cymbalta Cold Turkey

A MyEpilepsyTeam Member asked a question 💭
New Albany, IN

Had anyone ever experienced issues with the drug Cymbalta? My doctor ill advised me to stop it cold turkey and suggested that the Effexor he started me on would help with any type of withdrawal. Well I ended up in the ER for the 8TH TIME because I'm withdrawing from a sharp decrease in Lamictal and cold turkey on Cymbalta with new side effects from Effexor. I have read that there had been lawsuits against the FDA regarding the withdrawl symptoms and lack of sufficient studies. I now see why for… read more

A MyEpilepsyTeam Member

Thank you all so much for your support and experiences!

September 7, 2016

Do Good Flashbacks Also Make Anyone Else Much More Depressed

A MyEpilepsyTeam Member asked a question 💭
Potchefstroom, ZA

Hello.

Do you guys also experience an extreme sense of lonliness at times?

I am ussually fine, but today I was at a farmers market and suddenly remembered something good when I wad in a relationship.
Has this happened to anyone els3?

A MyEpilepsyTeam Member

:) BainQueenston

September 5, 2016

Complementary / Alternative Treatments Has Anyone Had Experience With Using Cannabidiol, The Active Ingredient In Charlotte's Web?

A MyEpilepsyTeam Member asked a question 💭
Hotchkiss, CO

Has anyone had experience with cannabidiol, the active ingredient in Charlotte's Web?

A MyEpilepsyTeam Member

Ok I am new at this but I take the low thc oil. I was on opiods for pain management. The key is to make sure you wean yourself off with the help of your dr or pharmacist. Don’t just stop taking your… read more

June 15, 2018
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