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My friend and myself are making a YouTube channel about life. We want to have a big segment on seizures and epilepsy. We were wondering if anyone would volunteer videos of them having a seizure or auras so we can raise awareness and support
Please and thank you xoxo
Have a seizure free night
I'd like to see some videos
Waiting
Are there days when there is so much stress, for which I have reasons, that you find yourself just waiting for a seizure? I usually use rescue medication and do relaxing breathing exercises. Right now I feel tighter than a banjo string and eating everything that is not nailed down.
Funny thing today is my birthday and have not used a ride from insurance since had them until had out town trip, he got a speeding ticket right in front me I was late! I feel lonely a lot not today
Reading
Is anyone reading a good book? Do you find it hard to stick with the plot sometimes whether the book is good or bad? I find staying with the plot difficult at times.
@kathyrn13 I just heard of that book today and I plan to get it. It sounds so interesting and I can’t wait to see it as a movie. But I have to read the book first. I am going to recommend it for… read more
Has Everyone Had A EEG Before
Yes, Every Year
How To Put Into Words What You Experience During A Seizure.
Morning everyone. I was just wondering if anyone else has trouble describing their seizures. I keep a diary of my seizures for my epilepsy nurse. I had a seizure this morning and I've just been writing out what I felt and experienced and it just sounds stupid and almost contradictory. Can I have someone else's opinion of what I have recorded? I wrote
Had aura/weird feeling lasted maybe 20 mins, I'm not sure exactly. Felt like it lasted a long time. I had twitches in my left hand and left leg… read more
Ha hahaha, that's funny. I can go 3 different ways with that. I can come up all like I'm the vet with his own clothes. 2. The funny guy that tells them I "came too" whilst walking down the street… read more
Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?
Just eat a healthy diet and eat salad too
What’s Your Favorite Way To Spend Your Free Time?
I like to walk my dogs!
I am working on writing my articles and books. Also, crocheting items which I give to Goodwin or places for homeless people
What's Your Top Ten Playlist On Music Listening This Week?
I love listening to the Beatles and the Beach Boys, 60's music.
Does Anyone Feel Like You’re A Burden? My Life Has Changed So Much. Some Family Don’t Understand What It’s Like To Be How I Feel At Times.
Lena we are like family here. I feel guilty because when I’m well i can get so busy that I forget to check in on rveryone or post an update. I have to learn to slow down. Being part of this community… read more
What Have You Learned About Epilepsy That You Wish You’d Known Earlier?
I didn’t know that 70% of all seizures can be controlled by medication.
Of course had 3 surgeries on spine.
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