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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Epilepsy Symptoms Keep You Up At Night?

By A MyEpilepsyTeam Member 222 answers

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member 270 answers

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 96 answers

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 165 answers
12432 questions

Does Anyone Else Feel A "Deja Vu" Before They Have A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Salem, OR

Sometimes it is a feeling like I have been in that same exact spot, looking at the same exact thing I have seen in a dream. Sometimes I even wake up to a "Deja Vu" and feel nausea and like I have to diarrhea at the same time.

A MyEpilepsyTeam Member

Hi à Deja vu is a aura to seizures from a temporal lobe. If yowish to find out what other auras are just type In your search box " What do epileptic seizures from the, here put lobe of brain,auras… read more

May 3

Are Your Seizures Affecting Your Relationship

A MyEpilepsyTeam Member asked a question 💭
Providence, RI

I'm a little confused, frustrated, and even more anxious because I noticed tension brewing. My husband's getting I think aggravated with my emotional rollercoaster. He says I'm pushing him away. Although I know he means well when his response to me venting is the phrase I despise "let things go..." It isn't that simple. I was always told I dwell on things and that makes me sick, indicating it's my own fault. It made me burst into tears this morning. 😭 Yes things have settled down, I'm calm now… read more

A MyEpilepsyTeam Member

Hang in there and try and stay pos

March 25

Any Tips For Dating And Telling A Date About Your Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

Have my first date tonight after being diagnosed. Not sure how/when to disclose that I have epilepsy or explain it, I'm very nervous about having a seizure in front of him.
Could anyone please give me some advice or tips? Thanks so much :)

A MyEpilepsyTeam Member

Yes mind has been control 25 yrs sz free

November 6, 2023

Have You Ever Wounded Why Their Are No Commercials For The Cure Of Epilepsy ?

A MyEpilepsyTeam Member asked a question 💭
Greer, SC

there are commercials for cancer, Heart Disease, and a half a dozen more yet no one has even hardly heard of Epilepsy just think of
what good could be done if we had a few commercials ask for help
and talking about it maybe people would know what to do if they saw one

A MyEpilepsyTeam Member

Because there is no cure for epilepsy. Epilepsy is a treatable, but incurrable disease. This is why even when people have surgery the reoccurrence of seizures may still be a possibility.

March 24
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Learn more about available surgeries to treat epilepsy Read more >

Invisble

A MyEpilepsyTeam Member asked a question 💭
London, UK

There are SO many invisible conditions out there: like asthma diabetes, heart disease, diperssion,alsimas, dementia, Cancer, anxiety, stomach problems epilepsy curvature of spine and turts so why does the serenity ONLY see people in weel chairs and a walking stick?! Can I get a support from liking this post?people who deal with those conditions are people with GREAT STRENGTHS... 😘😂

A MyEpilepsyTeam Member

I have a family of abuse

February 17, 2017

Group On Facebook

A MyEpilepsyTeam Member asked a question 💭
eleanor-g-williams@hotmail.co.uk

I'm creating a group on Facebook but I don't know what to call it. Has anyone got any ideas? It is a group for epilepsy.

A MyEpilepsyTeam Member

Seizure Me this

May 27

Which Epilepsy Symptom Surprised You The Most?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
A MyEpilepsyTeam Member

Notify your doctor - but be sure to look for others suffering from the same symptoms. I’m not sure about your med, but you might even want to look into others that take it for something besides… read more

7 days ago

Has Anyone Had Suicidal Thoughts Or Tendencies Because Of Seizures Or Even Medication??

A MyEpilepsyTeam Member asked a question 💭
Andrews, TX

I’ve been on OXcarbazepine for a long time (over 3 yrs) and I’ve noticed my mood changes often. Either I get depressed extremely bad or Instantly angry. Either way SI creeps in and it is really hard to fight
I have been hospitalized twice for possible intent. It starts with anxiety and can go either way. Final results seem to lead to Suicidal Thoughts. Not always but sometimes.
Does anyone relate??

Please don’t respond if you have Never had this problem. I don’t need ridiculed… read more

A MyEpilepsyTeam Member

Yes, I can relate. Between middle school and my 30’s, I tried to kill myself three times. For me, the thoughts come from previous trauma as well as AEDs. After all of these years, I’ve finally… read more

October 4
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >

Do You Find Multivitamins And Calcium Supplements Helpful?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

Speaking for myself, I don’t find them helpful. Constipating! I try to follow a low fat diet and exercise to strengthen my bones and ligaments.

A MyEpilepsyTeam Member

I take vitamin D3, and my neurologist also let me know that that's a vitamin that I need to keep taking

October 1

I Dislike Flurry Sz’s , My Memory Is Crap! I Smile And Go On!

A MyEpilepsyTeam Member asked a question 💭
Piedmont, CA

I couldn’t remember the name for wedding vale or past things yesterday!

A MyEpilepsyTeam Member

My wife and I will get up and dance in the living room whenever we head the song "Forever Yours - Journey". In Christmas in 2015, I took a TIA-stroke and after release I could not listen to many songs… read more

June 7
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