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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Aspects Of Epilepsy Are You Grateful For And Worried About Lately?

By A MyEpilepsyTeam Member 220 answers

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 165 answers

What Is Your #TopTip For Living Better With Epilepsy?

By A MyEpilepsyTeam Member 56 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 147 answers
12438 questions

Migraines

A MyEpilepsyTeam Member asked a question 💭
Rochester, NY

I have been waking up with horrible migraines like 5 out of the 7 days a week. I take Lamictal and Topamax. I know Topamax is supposed to help with headaches so that's weird. My Dr. had me do a study to make sure I wasn't have seizures in my sleep and I'm not. Does anyone else have this issue?

A MyEpilepsyTeam Member

Yes I have non-epileptic seizures caused by stress and anxiety

March 6

Does Anyone Know Of An Employer That Would Hire Someone With Epilepsy I'm Really Trying To Get On My Feet

A MyEpilepsyTeam Member asked a question 💭
Buchanan, MI

Any advice would be greatly appreciated

A MyEpilepsyTeam Member

I'm not sure if libraries where you are do it but up in Philadelphia all libraries have free events. You may want to check out the library. Some of the events libraries here are searching for a job… read more

March 21

Effects From Epilepsy

A MyEpilepsyTeam Member asked a question 💭
Coventry, UK

As I have got older I have noticed that I am becoming more forgetful and that I am finding it harder to concentrate on something. Is this a common problem that occurs with epilepsy does anyone else suffer with this too?

A MyEpilepsyTeam Member

I also was diagnosed at 40. I thought I used to have a great memory, but not anymore. I feel kind of stupid sometimes

January 24, 2016

Alotkof

A MyEpilepsyTeam Member asked a question 💭
Bradford, UK

I have temporal lobe epilepsy and alot of the time I wake up with what I can describe as a hangover even though I haven't touched alcohol my head feels fuzzy and I just don't feel with it. Any ideas what it is?

A MyEpilepsyTeam Member

I have recently found that we end up digesting alcohol from mouth wash the Listerine we supposed to use to prevent dental problem and gum disease from meds is 20 percent
Alcohol
I dilute mine with a… read more

April 8, 2016

Emotions

A MyEpilepsyTeam Member asked a question 💭
Cibolo, TX

Does anyone ever cry and get angry and feel like a burden and always feel like they have to apologize for having a seizure ??

A MyEpilepsyTeam Member

ThomasAlanChristensen at times of seizures, you are someone else. It's not being bipolar, but difference in emotions courtesy of sections of the brain's all acting at once, can result in not being… read more

March 27, 2017

What Type Of Seizures Does The Vns Implant Helpful For?

A MyEpilepsyTeam Member asked a question 💭
Lewiston, ME
A MyEpilepsyTeam Member

I believe the VNS may be helpful with any type of form of seizure. I say so because all seizures are a strong electrical impulse emerged from the brain. The VNS is a stimulator implanted usually on… read more

October 13
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Its Hard For Me To Talk About My Epilepsy . Ive Always Been Ashamed Of It . Howw Do You Deal With Emotion Side Of Epilepsy

A MyEpilepsyTeam Member asked a question 💭
Independence, VA

How do you deal with emotional side of epilepsy? And not feeling ASHAMED of having it?

A MyEpilepsyTeam Member

Prince the singer has epilepsy.

February 5

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
A MyEpilepsyTeam Member

I try to put out just 1 or 2 pieces daily. Notice I say try!!

1 hour ago

Do You Dream Every Night?or Do You Like Dreaming?

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

I don't dream every night, when I do I like the dream cause I'm always with others, but when I wake up I get a shock of being alone or lonely.

A MyEpilepsyTeam Member

What do you mean ?

19 hours ago

Which One Or Two Anti-seizure Medications Has Been Most Helpful?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

Time-released Tegretal was my best experience with AED’s. Expensive! However. At that time I had outstanding insurance. However. After a couple of uneventful decades, Tegretal sabotaged my potassium and I needed 8 liters of saline. Twice. Now? Keppra. I’m not particularly impressed, although I have been seizure free since 2018.

A MyEpilepsyTeam Member

Tegretol and Lamictal

October 14
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