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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member 270 answers

What's A Common Misconception About Epilepsy?

By A MyEpilepsyTeam Member 302 answers

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member 165 answers

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 165 answers
12438 questions

How Do You Handle Relationships With Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Mesa, AZ

Awhile back I was in a pretty tough relationship where the individual wasn’t too accepting of the fact that I had epilepsy. They actually would say I was broken and made me feel pretty bad about it. Honestly this was the most toxic relationship I’ve been in. This his was actually my last relationship I have had and since then I’ve been pretty closed off honestly I can’t deny it has a lot to do with it. My question is have any of you received judgment for it? And if so what would you do in these… read more

A MyEpilepsyTeam Member

Thank you! My thoughts and prayers are with you as well!!

August 8

What Is Something That Makes You Laugh?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

Well! That depends on my mood lol 🤩

A MyEpilepsyTeam Member

Well, I have a dark sense of humor, so I'm not averse to a bit of schadenfreude, and laughing at things a lot of people wouldn't find funny. I do have my limits though. Just as there are some things I… read more

April 3 (edited)

How Has Epilepsy Affected/changed Your Life Today?

A MyEpilepsyTeam Member asked a question 💭
Kenya

Memory and Epilepsy

Changes in your ability to remember names, places,past events word meanings, even shopping items😥? Changes that affect the way you live your life, and not always for the better?
Feeling frustrated, angry at life,and the condition itself..
At the end of the day,all will be well..
I got to learn to live with it..

A MyEpilepsyTeam Member

Hugs.🫂

March 26

What Three Things Help You Start Your Day Well?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

A good breakfast, taking my meds, and walking

A MyEpilepsyTeam Member

My Old School Music, Yoga, Exercises & Take It From There, By What Do I Have To Do Or Go For The Day

June 16

What Are Your Plans For The Weekend?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

Today I made chicken soup. Tomorrow? Lentil soup! And making candles.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member sounds like alot of fun.

June 16

What Have You Learned About Epilepsy That You Wish You Knew When You Were First Diagnosed?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

I learned that good can come of a diagnosis that initially devastated me. I know, I know….I can’t believe it either. 🤩 But it’s true! Earning the label “tenacious” feels like a badge of honor.

A MyEpilepsyTeam Member

If we could just make it known to everyone that there’s currently no way to make this go away, kinda like they did with cancer, and let people know that even though they currently don’t have a cure… read more

March 12

Does Anyone Live By Themselves And Not Have A Job?

A MyEpilepsyTeam Member asked a question 💭
Lewisburg, WV

I’m 26 and live by myself, but go to my parents house every couple weeks. I’m only out with someone when my mom takes my shopping and when I’m league bowling on Monday nights. This makes me more uncomfortable and afraid of having a seizure from depression.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member hi Jeffrey, it would be hard for me just because I have trouble a little trouble taking care of myself. I had to watch my parents dogs a few months ago at their house while… read more

January 29

What Do You Appreciate Today?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

Preventative medicine! I saw this Arctic Blast coming and shopped accordingly. And stayed home! I am not going anywhere until it is well over 40 degrees. Too slippery!

A MyEpilepsyTeam Member

Being alive, and having the opportunity to make a difference in the life of others before I leave this earth.

February 10

Do You Think It’s A Crazy Idea?

A MyEpilepsyTeam Member asked a question 💭
Chorley, UK

Ok , i have been sitting on the idea for a while and was thinking that the pay for speaking isn’t great and doesnt happen every week , more of a Part-Time. I was thinking about why don’t i look for a steady Job as a Interpreter once i’ve got the courses 1-6 certified done since it’s a paid per month job? I don’t know if it’s a silly idea or not??? Opinions please

A MyEpilepsyTeam Member

I think it is an excellent idea. I have been trying to get my son to try this as a job. He speaks excellent Spanish and English. I see so many jobs for interpretation and the pay is really… read more

February 6

What Life Hack Has Helped You Manage Your Condition?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

Rest is my life hack! And a good night’s sleep. Makes me feel like a 2025 Ferrari! 🤩

A MyEpilepsyTeam Member

Ketogenic diet and lifestyle change is helping me greatly

June 23
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