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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 95 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 146 answers

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member 163 answers

How Does The Cold Affect Your Epilepsy?

By A MyEpilepsyTeam Member 184 answers
12378 questions

If Your Seizures Are Under Control, Do Your Side Effects (either From Seizures Or Meds) Come And Go?

A MyEpilepsyTeam Member asked a question 💭
Westchester NY

As far as I know, I haven't had a seizure in over a year. It took me 11 months to feel like myself again after the last one. Then I had 3 months of feeling really good. Now all of a sudden the side effects (brain fog, memory, exhaustion, depression, word recall, etc.) are back. I'm trying hard not to feel like I'm backtracking and to view it as all part of the package. For those of you whose seizures are under control, do your side effects come and go?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I haven't had a grand mal or even a petit mal since 1998, when I had my VNS put in. What I do have are simple partials----they are like dizzy spells that last about 30… read more

October 31, 2021
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NOT Epilepsy Related, Just Curious. Has Anyone Experienced Mirror-Touch Synesthesia ?

A MyEpilepsyTeam Member asked a question 💭
Hewitt, MN

So if you see a person get hurt or injured a area of their body, by you witnessing it or just seeing it on a movie or tv show and you can mentally feel the pain. I found out, that 2% of of us in the U.S. have this ability.

I experience this a lot . I would see someone not watching where they are going and they would walk into the wall or something and let’s say their head got the worst of it. I would feel the mental sensation and I would even place my hand over my head and say, ouch! One time I… read more

A MyEpilepsyTeam Member

apparently im stupid when im asked to remember 100 things and when I say I don't remember I'm lying no way. Serious family torture not ok

July 12, 2021

Does Anyone Else Struggle Feeling Motivated To Do Stuff?

A MyEpilepsyTeam Member asked a question 💭
Chorley, UK

I really struggle if I've been set tasks to do such as tidy up around the house and kinda hit lazy mode and not motivated to do anything? Does anyone else feel like this? Just I forget the tasks and I'll start a day doing stuff the next day I won't bother just motivation to do stuff just goes?? Please help

A MyEpilepsyTeam Member

Everyday of my life

January 11

How Do You Tell Someone That Your Epilepsy Keeps You From Driving?

A MyEpilepsyTeam Member asked a question 💭
Sanger, CA
A MyEpilepsyTeam Member

I have had the pleasure of driving 4 times in my life in the 80’s. Shortly after the last time I drove a car I did some research and found out what the laws are in my home state. The law was a… read more

April 13

Bruises

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

The last seizures I have had I have bruised badly and they have not healed. Does anyone else bruise badly and take a long time for them to heal?

A MyEpilepsyTeam Member

Little bruised Patty 💜

May 7

Shielding And Coronavirus

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

For those who have been shielding and staying indoors for a long time are you nervous about shielding ending and worried you may catch the virus from a second wave. With my immune system being weak I don't think some governments have thought things through. Is this just me being worried or do others feel the same?

A MyEpilepsyTeam Member

Learning choices will vary from county to county.

August 9, 2020

Does Anyone Else Have Out Of Body, Past Life Experiences During Their Seizures?

A MyEpilepsyTeam Member asked a question 💭
Caldwell, ID

I feel like I'm from a different world and everything seems new to me every time i have a seizure. It feels like i was in a life back in history and I'm seeing how the Earth has changed over all these years.

A MyEpilepsyTeam Member

I used to have some serious deja vu when I was a kid and that followed me for a long time into adulthood, however it didn't happen as much then. My seizures at night still sometimes cause in it such… read more

June 3, 2022

Does People Have Seizures In Their Sleep?

A MyEpilepsyTeam Member asked a question 💭
Newbury, UK

It most happens early morning, im having a seizure, losing my vision, headache, sickness, dont realise it happening until i wake up. It like im unconousious because i dont know where i am for a few secoud. Im gone completely blind so i dont know what in doing until i have to shout for one of my parents. I dont always shout i do tend to go through it on my own.

A MyEpilepsyTeam Member

Most of my grand mals have been while I was asleep, in the early morning hours
Yes, seizures during sleep are extremely likely
They are more likely during sleep bc as the gears shift through the… read more

February 18

If I Wind Up In The Hospital Because Of The Covid-19, Will The Staff Know When To Give Me My Epilepsy Meds On Time?

A MyEpilepsyTeam Member asked a question 💭
Palm Harbor, FL

I had Temporal Love Surgery back in 2006 but the Neurologist ICU was full after the surgery was completed (7 hours). They thought I was doing good so put Me in General Recovery. The Nurse gave pain killer Meds but no Epilepsy Meds. Wound up with 4 Tonic Clonic seizures right away!

A MyEpilepsyTeam Member

If it is a hospital you regularly go to they have records

July 7, 2020

Triggers

A MyEpilepsyTeam Member asked a question 💭
Yankton, SD

Hi! If you are on medicine to control your seizures, do you find that it helps so your triggers don't set off a seizure? Or do you find that you still have seizures as usual when triggered? For instance, one trigger for me is caffeine. I can tolerate very little. If I have too much, I have a seizure. Is this normal since even though I am on medication?

A MyEpilepsyTeam Member

Thanks Alan for your advice. I really appreciate it and I hope that you're doing well also.

October 18, 2021
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