Ketogenic Diet
Has anyone tried the ketogenic diet? Any thoughts or advice on the diet?
Many children are put on this diet that are experiencing uncontrolled seizures. It works. I have heard that in adults the success rate is moderate, but the result can be that some adults have been… read more
And Now For Another Silly Question -
What is your favorite TV show? Mine is a tie between Dr Who and Derry Girls.
My favorite series is Once Upon A Time. The more times you watch the series again, the more details you see that you missed.
Has Anyone Had A Covid Vaccine? That Causing Vomiting,
I had a covid vaccine, then a few hours later I was sick over 8 times.
I understand, Take care 🙏
I Have A Few Questions If Anyone Would Like To Listen....
Yes been having tonic clonic seizures during my sleep since 1986. Normally being woken by an aura seconds to a couple of minutes before loss of consciousness. But I have had a few during daylight… read more
What Should I Expect From My First At-home 24 Hr EEG?
I've had one before where it was in clinic and they set the baseline with the flashing lights and making my hyperventilate and everything was video and audio recorded and the nurses would keep waking my up since some of the wires kept having to be reattached. They told me I could work remotely but when I got there, I was not allowed to touch my computer so just slept most of the time. What should I expect doing this at home for the first time?
Myself my son and daughter had 24 x 7 test which was EEG CEG test with a video running all the time. We had no restrictions on what we could do it was explained to us how to care for the appliance… read more
I Know It’s Not Epilepsy Related I’m Sure But I Don’t Think Paranoid Is The Right Description??
Does anyone else when in a que in a shop and someone stands behind me i have turn my body side on and take few steps side ways or if i’m in a Cafe and it’s packed i would rather stand 15 minutes outside instead of being around a lot of people??? It’s like social anxiety but i’m not sure if thats the right way to describe it
It’s called agoraphobia, a fear of crowds and closeness of people. I know because I have it too, and I am currently working with a therapist on recognizing and regulating my reactions. For me it’s… read more
Joint Replacement
Has anyone on this site had joint replacement and had any problems due to their epilepsy or their medication? A knee replacement is my next big adventure - yay - said with much sarcasm.
Thanks for all the great comments and information. I will tell the anesthesiologist about my AEDs and the other medications I take. I have had anesthesia changed once due to my medications. I love… read more
I Hope Everyone Is Getting Better 👍 I Like Dealing With Difficult Situations Because When You Think Long Enough Anything Can Be Solved.
I’m looking for someone who has refractory temporal lobe epilepsy secondary Tonic Clonic seizures with a temporal lobe carvenoma
What I have difficulty understanding is the Neurologist here in SW Florida are telling me there is nothing wrong with the carvenoma
When I read about it with the major hospitals they said 80% of epileptic patients can be cured due to pressure and staining. This has never been explained to me or offer to send me somewhere else with better treatment. Are they selfish… read more
@A MyEpilepsyTeam Member Went through many tests to find the right option because I was having complex partials but in the end we first went with Vagus Nerve Stimulator in 2008 then the Deep Brain… read more
I Have Absence Or Partial Complex Seizures. I Have A Seizure Calendar To Keep Track.
I cannot remember how long a actual seizure is, often. The great confusion I think may be something called Post-ictal. What is the seizure? I do not know about what the recovery time is. After a large one I may sleep for a while. Lack of sleep is a Trigger.
Where Do Most People Get There Meds From?
I just have them delivered from the hospital pharmacy since they offered free mailing since I don't have a drivers license. I am watching some couponing videos from Walgreens and CVS. It made me wonder, are the meds available from Walgreens or CVS and if yes, is the monthly cost the same and is it going to your account where you are earning points to purchase other items in the store for free? Is that a thing.....
I get mine at Walgreens, covered by insurance