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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 95 answers

What's A Common Misconception About Epilepsy?

By A MyEpilepsyTeam Member 301 answers

What Are Your Top Tips For Dealing With Epilepsy In The Heat?

By A MyEpilepsyTeam Member 130 answers

Does Anyone Else Get Depressed Listening To Other Family Members Talk About Their Perfect Happy Lives When You Don’t Have Any Of It?

By A MyEpilepsyTeam Member 76 answers
12379 questions

Ketogenic Diet

A MyEpilepsyTeam Member asked a question 💭
Hilliard, OH

Has anyone tried the ketogenic diet? Any thoughts or advice on the diet?

A MyEpilepsyTeam Member

Many children are put on this diet that are experiencing uncontrolled seizures. It works. I have heard that in adults the success rate is moderate, but the result can be that some adults have been… read more

September 23, 2015

And Now For Another Silly Question -

A MyEpilepsyTeam Member asked a question 💭
Pittsboro, NC

What is your favorite TV show? Mine is a tie between Dr Who and Derry Girls.

A MyEpilepsyTeam Member

My favorite series is Once Upon A Time. The more times you watch the series again, the more details you see that you missed.

14 hours ago

Has Anyone Had A Covid Vaccine? That Causing Vomiting,

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

I had a covid vaccine, then a few hours later I was sick over 8 times.

A MyEpilepsyTeam Member

I understand, Take care 🙏

5 days ago

I Have A Few Questions If Anyone Would Like To Listen....

A MyEpilepsyTeam Member asked a question 💭
Waynesboro, GA
A MyEpilepsyTeam Member

Yes been having tonic clonic seizures during my sleep since 1986. Normally being woken by an aura seconds to a couple of minutes before loss of consciousness. But I have had a few during daylight… read more

October 12

What Should I Expect From My First At-home 24 Hr EEG?

A MyEpilepsyTeam Member asked a question 💭
Minneapolis, MN

I've had one before where it was in clinic and they set the baseline with the flashing lights and making my hyperventilate and everything was video and audio recorded and the nurses would keep waking my up since some of the wires kept having to be reattached. They told me I could work remotely but when I got there, I was not allowed to touch my computer so just slept most of the time. What should I expect doing this at home for the first time?

A MyEpilepsyTeam Member

Myself my son and daughter had 24 x 7 test which was EEG CEG test with a video running all the time. We had no restrictions on what we could do it was explained to us how to care for the appliance… read more

October 8

I Know It’s Not Epilepsy Related I’m Sure But I Don’t Think Paranoid Is The Right Description??

A MyEpilepsyTeam Member asked a question 💭
Chorley, UK

Does anyone else when in a que in a shop and someone stands behind me i have turn my body side on and take few steps side ways or if i’m in a Cafe and it’s packed i would rather stand 15 minutes outside instead of being around a lot of people??? It’s like social anxiety but i’m not sure if thats the right way to describe it

A MyEpilepsyTeam Member

It’s called agoraphobia, a fear of crowds and closeness of people. I know because I have it too, and I am currently working with a therapist on recognizing and regulating my reactions. For me it’s… read more

October 16

Joint Replacement

A MyEpilepsyTeam Member asked a question 💭
Pittsboro, NC

Has anyone on this site had joint replacement and had any problems due to their epilepsy or their medication? A knee replacement is my next big adventure - yay - said with much sarcasm.

A MyEpilepsyTeam Member

Thanks for all the great comments and information. I will tell the anesthesiologist about my AEDs and the other medications I take. I have had anesthesia changed once due to my medications. I love… read more

September 22

I Hope Everyone Is Getting Better 👍 I Like Dealing With Difficult Situations Because When You Think Long Enough Anything Can Be Solved.

A MyEpilepsyTeam Member asked a question 💭
Cape Coral, FL

I’m looking for someone who has refractory temporal lobe epilepsy secondary Tonic Clonic seizures with a temporal lobe carvenoma
What I have difficulty understanding is the Neurologist here in SW Florida are telling me there is nothing wrong with the carvenoma
When I read about it with the major hospitals they said 80% of epileptic patients can be cured due to pressure and staining. This has never been explained to me or offer to send me somewhere else with better treatment. Are they selfish… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Went through many tests to find the right option because I was having complex partials but in the end we first went with Vagus Nerve Stimulator in 2008 then the Deep Brain… read more

September 22
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I Have Absence Or Partial Complex Seizures. I Have A Seizure Calendar To Keep Track.

A MyEpilepsyTeam Member asked a question 💭
Stamford, CT

I cannot remember how long a actual seizure is, often. The great confusion I think may be something called Post-ictal. What is the seizure? I do not know about what the recovery time is. After a large one I may sleep for a while. Lack of sleep is a Trigger.

A MyEpilepsyTeam Member

My Neurologist will schedule another EEG at home for 72 hours. 3 to days of being on camera with the EEG on. Because I am still having seizures, she also raised the Briviact Dose at night to 150 from… read more

September 23

Where Do Most People Get There Meds From?

A MyEpilepsyTeam Member asked a question 💭
Minneapolis, MN

I just have them delivered from the hospital pharmacy since they offered free mailing since I don't have a drivers license. I am watching some couponing videos from Walgreens and CVS. It made me wonder, are the meds available from Walgreens or CVS and if yes, is the monthly cost the same and is it going to your account where you are earning points to purchase other items in the store for free? Is that a thing.....

A MyEpilepsyTeam Member

I get mine at Walgreens, covered by insurance

October 7
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