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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Does Anyone Else Get Depressed Listening To Other Family Members Talk About Their Perfect Happy Lives When You Don’t Have Any Of It?

By A MyEpilepsyTeam Member 76 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 146 answers

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 95 answers

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member 269 answers
12381 questions

Weight Gain With Medication

A MyEpilepsyTeam Member asked a question 💭
Los Gatos, CA

Has anyone gained weight due to there medication/medications?

A MyEpilepsyTeam Member

i was up to 220lbs. i got put in a mental ward(this crazy) when i got in there...i had a bad spell. they took me to I.C.U. for awhile. went back to floor 3, after that was over. boy i was glad to be… read more

December 6, 2023

How Many People Have Discovered Through Therapy That They Have PTS Due To Unhealed Epilepsy Issues From Adolescent Years?

A MyEpilepsyTeam Member asked a question 💭
London, UK

Hi everyone hope you're all as well as can be 💜
I decided to start some CBT to help with my anxieties and fears taking different brands of Leveteracetam as I have been given 4 different brands in 3 months which have all had different side affects but I wasnt sure if some of the side affects were actually real or psychosometic 🤔
My therapist has been great. I have realised that I tend to ruminate in what ifs buts and maybes due to past experiences taking Epilim and how that medication really was… read more

A MyEpilepsyTeam Member

i have uncontrolled kid seizures from a combo of kindergarden boosters vax and my undienosed until it was too late celaic disease (gut problem) at birth. i have pts and ptsd from all the trauma from… read more

October 9, 2023
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Do Anyone Have A Medical ID? If So, Do You Wear It All The Time?

A MyEpilepsyTeam Member asked a question 💭
Philadelphia, PA
A MyEpilepsyTeam Member

I have a bracelet that I wear all the time.

January 16

Medication Sid Effects

A MyEpilepsyTeam Member asked a question 💭
Columbia, SC

I am taking 3000 mg of Keppra and 450mg of Oxcarbazepine per day. Is there anything to reduce the side effects of these medications? I will do some research and share what I find out. Thank you

A MyEpilepsyTeam Member

I have learned one thing about keppra. Some people that take keppra experience what they call “keppra rage”. I know keppra works at least for some people. I have been trying it and I did experience… read more

May 23, 2023

You Guys Ever Been Like Extremely Tired?

A MyEpilepsyTeam Member asked a question 💭
Salt Lake City, UT

Your body just shuts down, you try to get up but you can't.

A MyEpilepsyTeam Member

I have a vns. Eventually I’ll have to get a replacement. ( the battery is starting to get low.

May 4, 2023
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Has Any Of You Had To Get Neurophycological Testing?

A MyEpilepsyTeam Member asked a question 💭
Orlando, FL

I think my MRI showed cognitive issues but i haven’t had my follow up yet. Today i get a call asking me to do this testing and she seemed to want me to do it immediately. Just wondering what the process is because i know it takes hours/:

A MyEpilepsyTeam Member

Actually, if you have high levels of anxiety and/or depression, then you might find as I have, since I have made some progress in Cognitive Behavioral Therapy (which I started back at the beginning of… read more

October 10, 2023

Is It Werid?

A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

I just purchased a wheelchair on the basis that if I had a seizure when I'm out my mum can just wheel me somewhere private instead of being subjected to strangers staring at her and me , plus I also got it for my periods of paralysis where I can't move and have balance issues and walk funny(ataxia attacks) so mainly it's for safety for me and ease of stress for my mum
I think I'm just concerned how other people will take it especially when I do have a small periods where I can walk okay and… read more

A MyEpilepsyTeam Member

Do what you think is best for the situation, what people think is their opinion, not yours. If they understand then that's cool, if not that's on them and not you, your call not theirs. My opinion

September 1, 2023

If You Could Fix One Issue About This World, What Would It Be?

A MyEpilepsyTeam Member asked a question 💭
Lexington, SC

Mine be hate, I want peace in this world.

A MyEpilepsyTeam Member

I agree on the Peace Love and Hatred. I wish there was no hatred. I wish we can all find peace and love with each other. I wish there can be zero hatred. I wish everyone can also stop blaming the… read more

April 10, 2023

Dose Anyone Else Take Their Meds And End Up Napping Afterwards Because Your Energy Gone???

A MyEpilepsyTeam Member asked a question 💭
Dayton, OH

I have energy before I take my meds in morning but shortly after I do I end up sleeping no matter what

A MyEpilepsyTeam Member

I've had anxiety/panic attacks since I was about 10...so with me being on something that causes depression/anxiety I might need something stronger than buspar...is and Effexor is just as much a joke… read more

April 12, 2023

Do The Ambassadors Have Any Meetings Or Communications With Those Who Run The Site?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

It is a fact that I will not hear back ever again if I contact the builders of this site or whoever they have running them. However, either by reading my suggestions or someone else who had the exact same suggestions or questions relayed to those who run this site have made modifications that are much more useful.

However, I am curious if they will provide a link to My Team (for all the sites) help site either to the opening screen or for the ambassadors to share with the new members.

https:/read more

A MyEpilepsyTeam Member

Right I had same question.

March 26, 2023
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