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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Epilepsy Symptoms Keep You Up At Night?

By A MyEpilepsyTeam Member 222 answers

What Aspects Of Epilepsy Are You Grateful For And Worried About Lately?

By A MyEpilepsyTeam Member 218 answers

Does Anyone Else Get Depressed Listening To Other Family Members Talk About Their Perfect Happy Lives When You Don’t Have Any Of It?

By A MyEpilepsyTeam Member 76 answers

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member 163 answers
12382 questions

Can You Get Pregnant And Take Your Medicine Supervised And Still Have A Healthy Baby

A MyEpilepsyTeam Member asked a question 💭
Kansas City, MO
A MyEpilepsyTeam Member

I did times 3

December 22, 2023

Is It Common For People With Epilepsy To Have "unremarkable" Brain Scan? Why Did The MRI Say "chronic Migraine"?

A MyEpilepsyTeam Member asked a question 💭
Miami, FL

I had an MRI done and was told it was to check for seizures but it says "chronic migraine" and "unremarkable" on it. It is saying my brain is normal size and shape, do others with epilepsy get this result?

A MyEpilepsyTeam Member

I have archnoid cysts on the fronto-temporal region of my brain and the neurologists have told me for over a decade, almost 25 years that it's normal. Now, my new epilepsy doctor, first epilepsy… read more

December 14, 2023

Has Anyone Else Had Their Epilepsy Type Diagnosis Changed?

A MyEpilepsyTeam Member asked a question 💭
Pretoria, ZA

When I was young, I was diagnosed with petite mal based on eeg and symptoms. But in my mid teens, my diagnosis was changed to temporal lobe, again based in a different eeg and symptoms. Has this happened to anyone else? And if anyone has an answer as to why this happened, I would love to hear about it!

A MyEpilepsyTeam Member

I wasn't told outright but for years my paperwork listed mine as "drug resistant" generalized epilepsy
I have been referred for some testing because of the ways the pattern and severity has changed… read more

February 14

Ladies Let's Talk.

A MyEpilepsyTeam Member asked a question 💭
Nebraska City, NE

Peroids and Epilepsy. Ufff. Anyone have success with certain kinds of birth control pills? Tips on managing effects of hormone changes on seizures? Anyone take Pamprin to help ease cramps, bloating and moodiness?

A MyEpilepsyTeam Member

You are so beautifully correct. We don’t know God’s plan. No matter how difficult it is He knew we could do it. I’ve been told God will never put more on our back than we can carry. We can do it… read more

September 1, 2022

Does Anyone On Here Suffer From Tardive Dyskinesia?

A MyEpilepsyTeam Member asked a question 💭
Orlando, FL

I’ve had weird uncontrollable movements for months that don’t show on my EEG. My seizures still happen often luckily they’re usually partials. But the spasms scare me, i’m always snapping my fingers without realizing and other weird things. So i was just curious if anyone suffered from this and had any knowledge on it because i may bring it up to my doctor. Nothing is being solved

A MyEpilepsyTeam Member

I was on three medications, My Epileptologist recognized right away and gave me a cardiac medication at a low dosage. It stopped it. I was very happy but my husband was happier, too!

October 31, 2023

Does Anyone Else Find That You Can’t Sleep For More Than 2 Or 3 Hours At Night But Can Nap For Hours During The Day?

A MyEpilepsyTeam Member asked a question 💭
San Antonio, TX

I think it’s part of why I am so exhausted. I don’t find time to nap often because I give myself so many chores to do so I feel like I add value to my sister and brother in law’s home. I know I have issues. 😞

A MyEpilepsyTeam Member

Good luck and prayers sent 🙏

June 11, 2022

Technology, Moving Emojis, Gifs, Attachments And Seizures

A MyEpilepsyTeam Member asked a question 💭

Do any of these moving emojis, gifs or attachments give you seizures or seizure activity, or disturb your brain? What do you do if so? Avoiding technology seems like not a great option.

A MyEpilepsyTeam Member

Yes it does trigger. Flashy lights. Camera shutterbugs. Any kind of persistence of vision at a rapid pace does trigger.

July 6, 2022

Do You Have A YouTube Channel/account, Pod Casts, Etc. To Teach Others About Epilepsy And Everything To Do With It?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

It would be very useful for not just friends on this site but also so that we can share the links to these (for those of you who are willing and ready) with others who have not yet even found the MyEpilepsyTeam site so they can learn about the subjects that you are sharing in each recording.

These can be shared with the Epilepsy Foundation (and its equivalent sites in other nations) and through them possibly with other sites such that we can get the information out to as many people with… read more

A MyEpilepsyTeam Member

I had taken part in Zoom.
Leslie

April 27, 2022

Is There A Meeting Site For People With Epilepsy Like A Video Group Discussion ?

A MyEpilepsyTeam Member asked a question 💭
Rome, NY
A MyEpilepsyTeam Member

not on this site but i and a couple of my team friends are going to get video chats on skype (or zoom or other video calls) and send it to video using the pic/video
another way is to live q&a (but i… read more

February 28, 2022

Has Anyone Here Had The ECoG EEG?

A MyEpilepsyTeam Member asked a question 💭
Ames, IA

I am set to have the ECoG Intracranial EEG(the grid on the surface of the brain), I have had the Depth Electrodes once. With my limited research it sounds that the depth electrodes were significantly easier... Just curious if someone could shine some light on what that whole process looks like and what I have to look forward too.

A MyEpilepsyTeam Member

Me 5 days

March 11, 2023
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