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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Epilepsy Symptoms Keep You Up At Night?

By A MyEpilepsyTeam Member 222 answers

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

By A MyEpilepsyTeam Member 90 answers

Are You Frustrated With Finding Effective Treatments For Epilepsy?

By A MyEpilepsyTeam Member 167 answers

How Does The Cold Affect Your Epilepsy?

By A MyEpilepsyTeam Member 184 answers
12385 questions

Has Anyone Else Noticed Sounds As A Seizure Trigger?

A MyEpilepsyTeam Member asked a question 💭
Simpsonville, SC

I have noticed one of my triggers is audio related (answering of a cell phone for instance or when I call someone and it starts ringing) as opposed to visual triggers. Has anyone else noticed this? Lights flashing do not bother me at all but certain pitches and sounds can trigger an aura for me... typically involving cell phones.

A MyEpilepsyTeam Member

It's mainly smells that set me off

June 6

Where To You Seek Or Find Treatment Or Medication? I Only Try To Only See Doctor When Needed.

A MyEpilepsyTeam Member asked a question 💭
Claremore, OK

People without coverage or coverage won't cover all or most costs.

A MyEpilepsyTeam Member

I see my epilepsy neurologist every six months as he is the specialist that provides my specific medication care. Should there be specific questions I do make a point of sending an email or phoning… read more

January 27

What’s The Best Device To Have In Case You Need Help During The Night In Case A Seizure Occurs? I’ve Been Trying To Find Something For

A MyEpilepsyTeam Member asked a question 💭
Hayes, VA

myself for several years now well I’m just not sure what to use in case I need a family member to come to my aid of help in case I need an ambulance called to take me to a hospital.

A MyEpilepsyTeam Member

If you watch the video on the link that Rusti shared, it says FOR ADULTS AND CHILDREN. In case you didn't see the video, click here: https://nightwatchepilepsy.com/nightwatch/#What...

October 6 (edited)

If You Have Replaced Tegretol, Which Other Drug Took Its Place?

A MyEpilepsyTeam Member asked a question 💭
San Diego, CA

Following my neurofeedback sessions I was able to reduce my seizures significantly. And the seizures I continue to have almost always occur when I am asleep. It would seem as though I can control my brain activity much better when awake.

A MyEpilepsyTeam Member

Thanks, Meredith! Regards, Jake

September 22

Question About Triggers

A MyEpilepsyTeam Member asked a question 💭
Huntington Beach, CA

This may have been asked before but I couldn’t find it.
If something is a trigger, does that mean that every time you’re exposed to it you will have a seizure or does it greatly enhance your chances at the time of the exposure.

A MyEpilepsyTeam Member

Mine are flashing lights, stress, too much caffeine, sometimes a co-occurring ailment or disease, not taking meds on regular schedule, but each of these makes it more likely for me to be susceptible… read more

September 20

How Many People Out There Have Happy Seizures From Excitement?

A MyEpilepsyTeam Member asked a question 💭
Murfreesboro, TN
A MyEpilepsyTeam Member

What would we rely on if diabetic or worse like a heart problem? All should be glad we live in first century to explain epilepsy with meds to help, not hurt.

October 7 (edited)

Does Epilepsy Always Effect Memory And Learning?

A MyEpilepsyTeam Member asked a question 💭
Bancroft, NE
A MyEpilepsyTeam Member

I have had very many seizures. Memory was not my best thing. As I got older, is was even more difficult, and often medications make memory much harder.

August 1

I Wear A Life Line Round My Neck, It Sits On My Chest, Anyone Else Have A VNS And One Of These?

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

I am curious whether this could trigger a seizure.

A MyEpilepsyTeam Member

I've had my life line for 25years, even though I have only used it twice it still gives me support knowing that it's there in case I have a hard fall due to living alone, Thanks for your support 🙏.

August 5
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More Of A Apology Then A Question...

A MyEpilepsyTeam Member asked a question 💭
Buffalo, NY

For the past week and a half my girlfriend and I have been on vacation up in the alligainy mountains, I know that it was mentioned in earlier post's I've made,
Anyway I didn't mean to ghost anyone here, I hope everyone is well and I look forward to catching up with the people I've met here and the new face's that showed in my absence 😉😁

A MyEpilepsyTeam Member

Agree with Jeffrey you a great enjoyable time no worry needed. We have meds to control epilepsy not allow it to control us. All need to keep in mind to relax

July 18

People With A VNS Noticed Any Seizures While Using A Microwave?

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

2 days running I had seizures after standing by a microwave oven while it was on.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, Thanks for your advice and support 🙏, since I have started standing further away from the microwave while using, my seizures have calmed down.

July 28
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