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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 163 answers

What Are Your Top Tips For Dealing With Epilepsy In The Heat?

By A MyEpilepsyTeam Member 130 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyEpilepsyTeam Member 70 answers

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member 269 answers
12448 questions

Seizures And Cats

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

I had a bad gran mal seizure in the shower last week and our cat witnessed it. Ever since then our cat has suffered from cystisis. According to our vet this is caused by stress to the cat and there is nothing much they can do but the cat will get better. As anyone else experienced this with their cat?

A MyEpilepsyTeam Member

My cat knows when anything is going on with my health before I even know. I just have to remember to keep watching her and I do that.

August 27, 2021

Differences Between Professionals

A MyEpilepsyTeam Member asked a question 💭
Newport Gwent

I see a lot of people on the site , mainly from the US I think ,referring to epileptologists ( hope that's the correct spelling ) What's the difference between them & a neurologist/ neuropsychiatrist I've had Epilepsy for 43 years & have never heard of an epileptologist until I joined this site My neuro is a Dr ,not a Mr so he's not a surgeon - he's attached to the epilepsy centre here in South Wales

A MyEpilepsyTeam Member

I'm being transferred to a bigger hospital and going to see a epilogist and going in to the Hospital for a week or two so they can tell me what Epilepsy I've got. It must be tonic clonic as I just go… read more

April 2, 2021

Cenobamate

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

Has anyone reduced their medication and been put on Cenobamate instead?

A MyEpilepsyTeam Member

Right now doing pretty well. The Neurologist increased the level on My Medtronic to 4 now for the Deep Brain Stimulation

September 13

How Many Here Like Me Have Their Adult Child/Children Still Living With You?

A MyEpilepsyTeam Member asked a question 💭
Palm Harbor, FL

First, Her 27th birthday is tomorrow. My Husband and I are taking Her out for dinner tomorrow. She'll be graduating from Physical Therapy Assistant Program March. Sometimes it gets very stressful and She forgets about My Epilepsy...

A MyEpilepsyTeam Member

Yes I do

March 30, 2021

UK COVID-19 Rules

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

Is it just me are all the rules for covid-19 complicated? I live in the UK in a tier 4 area but the government keep changing the rules which make it difficult to keep up.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member https://portal.ct.gov/Coronavirus

Everything that you need to know is right on this site.

February 4, 2021

What Side Of You Brain Does Your Seizures Come From?

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

My doc told me it was my "Emotional Side" (Right Side) of my brain where my Seizures come from. Was told to try to control my emotions. Any ideas?

A MyEpilepsyTeam Member

My seizures mostly re located in my left temporal lobe of the brain..
But I have a couple o smaller areas too

May 29, 2023 (edited)

Many Different Aura Presentations

A MyEpilepsyTeam Member asked a question 💭
Canberra, AU

I have had many different auras from Deja vu, numbness, taste to feeling I am on a fun ride and I have clusters of the same one and then they change to something I haven't experienced before. I have learnt that auras are seizures. Would they be classified as different types of seizures. looking back I find These days they don't seem to be a warning that I know of or I'm just not aware of anything happening other than these auras. No Tonic clonics

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member And too many young ones do not get credit for paying attention, but it is obvious your kelpie was back as a pup and thus became the heir to the task of looking out for you… read more

October 11, 2020

Your Personal Perspective??

A MyEpilepsyTeam Member asked a question 💭
Burns Lake, BC

I’m curious to find out your perspective on epilepsy. If someone who is newly diagnosed with E asked you if there was any hope of gaining seizure freedom, what would you say? Would you fill them with hope that they would be successful in achieving freedom, tell them that not everyone gets « cured » or something else altogether?

A MyEpilepsyTeam Member

It is possible I guess all you have to do is ask your doctor and see if that would be possible.

November 20, 2023
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How Many "Cold Calls" Do You Get As Far As Car Insurance And You Don't Have A License?

A MyEpilepsyTeam Member asked a question 💭
Palm Harbor, FL

I just got one tells Me they're My insurance company and asking Me info the type of car. They would have all the info before calling. I just told Cold Call...I don't drive...I don't have a license...I have Epilepsy!... She said that She was sorry 😉

A MyEpilepsyTeam Member

I get auto insurance mail to Me that I don’t have a Florida license!

October 16

Mental Health Among Epileptics

A MyEpilepsyTeam Member asked a question 💭
Caernarfon, UK

Do people think there is enough research made and support offered for people with epilepsy and dealing with mental health issues? I understand some people are weary with regards to talking about mental health but I believe its a part of the system that is failing us as people

A MyEpilepsyTeam Member

I have had the Depth Electrodes Test in the past. It was long, 3 1/2 weeks. I did NOT feel any pain, the gauze wrapped around my head kept me warmer then I liked. This test located where my… read more

August 23, 2020
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