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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

By A MyEpilepsyTeam Member 90 answers

What Epilepsy Symptoms Keep You Up At Night?

By A MyEpilepsyTeam Member 222 answers

What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?

By A MyEpilepsyTeam Member 158 answers

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 95 answers
12450 questions

Hello Everyone, I Was Wondering Do Any Of You Ever Have More Sezuires When The Seasons Change?

A MyEpilepsyTeam Member asked a question 💭
Charlotte, NC

It seems. Have more in the summer due to heat. More Cp and more auras in the fall winter due to low clouds, uncomfortable auras, de ju vue, anxiety, over sensitve and so on.

A MyEpilepsyTeam Member

Weater and season change mess me up next to no sleep and stress

November 13, 2018

Does Anyone Have Sezures In There Sleep? Wake Up With Fear And Tingling And Numbness In Body?

A MyEpilepsyTeam Member asked a question 💭
Charlotte, NC

I have had these i thought they were bad dreams but i was reading more into it to find out they were indeed sez i think.

A MyEpilepsyTeam Member

I have had that many times

November 7, 2018

Question Here And Ideas Please

A MyEpilepsyTeam Member asked a question 💭
Jefferson City, MO

What do you all think of wearing a medical bracelet or necklace? Sometimes I think it's going to label me or scare people away. Your thoughts please. Thanks in advance.

A MyEpilepsyTeam Member

Hi Jane, I have no problems wearing a "necklace," I'll call it. They're called a, "MEDIC ALERT" in Australia. I started off with a "bracelet" years ago when they first came out, (I'm 72), but switched… read more

June 7 (edited)

I Had The 4 Day Seizure Study When I Was First Diagnosed Then Via Eeg With Temporal Lobe Epilepsy. No Seizure Activity During The Study

A MyEpilepsyTeam Member asked a question 💭
New Orleans, LA

My new neurologist is telling me I don't have epilepsy based off this four day test. Thankfully I don't have the brutal seizures many of you have but I've had partials, absent, black outs and bizarre behaviors. I'm under control with the typical stabilization meds. Any four days of an epileptic's life varies, that's why I can't buy life time diagnosis from this. I'd love to say I don't have epilepsy but I'm not going to go jumping out of his office when I think he's wrong. Feedback?

A MyEpilepsyTeam Member

Good news but just be careful as well. One can never be careful enough

September 9, 2018

Spices

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

Sorry another foody question. Are certain spices good or bad for you? I enjoy Indian and Chinese food but don't want to over do it.

A MyEpilepsyTeam Member

I think that is on the individual, I am on a norm diet, I don't know if any food that is a prob, if a seizure does come about which I don't wish ,but if does I'm not going to stop my daily lifestyle… read more

October 4, 2023

A Wrist Watch That Warns A Person When That Person Is Having A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Exton, PA
A MyEpilepsyTeam Member

It's dif per person, I have heard of them, but I myself don't use one, I have seen my doc and since age 7, have no need for the watch or device mentioned, but that is me, I give my doc a estimate to… read more

October 13

Does Anyone Else Get Concentration Problems, Felling Dizzy Or Can't Recognize Where You Are? How Do You Deal With It?

A MyEpilepsyTeam Member asked a question 💭
Jersey City, NJ

Once in a while I feel dizzy & have a hard time concentrating. Like, I don't know where I am, I feel dizzy & I end up falling asleep. I usually deal with it by watching my favorite shows & playing video games. Who else has this problem? How do you deal with it?

A MyEpilepsyTeam Member

I do
I find that sleeping after having a seizure helps me reset my brain to normal
I do have dizzy spells, and concentration issues at times even if I don't have a seizure.
I have memory problems… read more

August 12, 2019

Focal Seizures

A MyEpilepsyTeam Member asked a question 💭
Leeds, UK

Hi everyone
Im new here! Im 33, from Leeds, UK. I was diagnosed with focal epilepsy around 3 months ago, after being told i had anxiety and panic attacks. I have focal/simple partial seizures. Im on Lamotrogine 100 at the moment which has reduced them and their severity but im getting them now when im falling asleep so hoping they ease as my body adjusts to the meds
Just keen to chat to others as this is new to me. I find it hard to chat to people as i only have mild seizures, like im a… read more

A MyEpilepsyTeam Member

I have palinopsia, so I have visual seizures. It like I look at something, say a photo on the wall and then I look away and the photo stays in my visual field
I get very visually overwhelmed
I see… read more

August 10, 2018

Can You Stop Minor Twitching Yourself If It's Epelptic Or Not?

A MyEpilepsyTeam Member asked a question 💭

Last night was very scary I hallucinated when I was awake which hasn't happened in a yr. When I hallucinate it's about my family being killed. I broke into hot sweats and my right wrist started twitching but I remember stopping it twitching myself by holding it. I'm assuming this is just anxiety and not epileptic?

A MyEpilepsyTeam Member

Sometimes panick attacks or post traumatic disorder can also bring on seizures

August 14, 2018

What Do You Think; Should I Add Something Or Leave As It Is?

A MyEpilepsyTeam Member asked a question 💭
Pittsburg, CA

Hello
There are moments in my life when im nothing but a joke to alot of you
And its not because ive said something funny or because ive done something stupid and fallen
Its because of something i cant control
To alot of you its nothing
To me and others its the chance for death
But you dont see that
You see a girl on the ground whose body cant stop shaking
You see your next prank or your 30 second video on youtube of exaggeration imitation
Hello
Im EPILEPSY
Invisble to the naked eye till my body… read more

A MyEpilepsyTeam Member

You cover many the events very good. You don’t need to add to it the only thing you may want to do is write a title for you poem.

I got fooled for a short moment. Then I realized it was a poem

August 1, 2018
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