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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Aspects Of Epilepsy Are You Grateful For And Worried About Lately?

By A MyEpilepsyTeam Member 218 answers

What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?

By A MyEpilepsyTeam Member 158 answers

What Are Your Top Tips For Dealing With Epilepsy In The Heat?

By A MyEpilepsyTeam Member 130 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 146 answers
12458 questions

What Are Your Thoughts On Having A Service Dog. Do They Really Help Out?

A MyEpilepsyTeam Member asked a question 💭
Akron, OH
A MyEpilepsyTeam Member

I don't know about a service dog, but I am thinking about getting a dog for company. I thought a dog was always kept outside, but a friend told me that they can really help with depression and… read more

March 11

It Seems After Reading A Few Posts On Here I Am Not The Only Person With Epilepsy Who Finds That Their Family Doesn't Want To Know Them!

A MyEpilepsyTeam Member asked a question 💭
Northumberland, United Kingdom
A MyEpilepsyTeam Member

My husband knew what he was getting into, he saw me have my worst seizure. Nowadays he does get frustrated when it takes a beat to catch up mentally. And he does get frustrated when I can't remember… read more

March 14

How Can The Knumbness Affect How A Person Feels?

A MyEpilepsyTeam Member asked a question 💭
Montclair, CA

I was having seizures since I was 5 days old. I had brain surgery in 1990. I've been having some knumbness in my head on the left side. My neurologist told me that the knumbness is my brain is still healing. I'm glad that I now know what the knumbness is because it was making me feel nervous. I was wondering if the knumbness was a seizure.

A MyEpilepsyTeam Member

I have numbness to Left side of my head, following a fall.

March 9
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Is It "normal" To Cry After A Seizure? Usually As I'm Coming Out Of The Seizure I Start Crying Uncontrollably. Is This Normal?

A MyEpilepsyTeam Member asked a question 💭
Wausau, WI
A MyEpilepsyTeam Member

Yes,

March 2

Does Anyone Lose Their Appetite After An Aura Or Seizure?

A MyEpilepsyTeam Member asked a question 💭
Tucker, GA
A MyEpilepsyTeam Member

I see a dietitian as well and have small milky drinks supplied for the same reason, I don't have a big appetite, what can have effect on your epilepsy and your overall health.

April 11

Can Anyone Tell Me What To Do When Your Mate Thinks They Know Everything About Your Seizures And You Know They Are Changing?

A MyEpilepsyTeam Member asked a question 💭
MCCORMICK, SC

My husband thinks he knows everything about my seizures. He is tired of them. He doesn't realize how tired I am. Before the seizures I had a sweat program after the abuse I suffered from my father. It scares me sometimes when I get nervous and think it might be back. I have finally found a deodorant that works but I still sweat when I am upset or in crowds. Just not as bad. I am afraid of body odor. How do I get him to understand that sometimes I don't remember repeating myself… read more

A MyEpilepsyTeam Member

He doesn't know everything because the doctor doesn't everything. Your the person going through it, sounds like anxiety also. Groups and crowds are awkward and can be intimidating, but you're the… read more

March 22

How Do You Deal With Going To A Funeral To Support Your Husband And Have To Ask Him To Bring You Home Early So You Won't Get Ill?

A MyEpilepsyTeam Member asked a question 💭
MCCORMICK, SC
A MyEpilepsyTeam Member

Let him know, what's up. Your trying not just for him but yourself. Your doing this and you might need to leave if uncomfortable or you feel something awkward.

March 22

Cenobamate

A MyEpilepsyTeam Member asked a question 💭
Brighton, UK

Anyone on this Anticonvulsant. I'm in UK might be called something different over in US. My son has just reached his last increase. 3 seizures last week during exercise, 2 of them anyway.

A MyEpilepsyTeam Member

His Cenobamate is at 150 mg once daily. His seizures have improved although he did have 3 the week BRIVIACT stopped. He won't be reading this, he is Autistic and not remotely interested. I am his… read more

March 1

I Wonder If You Have To Do Taxes If You Get Ssdi And I Used To Work About 1 And 3/4 Yrs Ago But Haven't Worked Since 2022 April, About There

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

Just curious , your thoughts and such or has anyone else been through not working and what you did about it.

A MyEpilepsyTeam Member

Don't think you have to file. Double check.

February 23

Having My 2 Hour Eeg Soon. What To Expect? I Will Be Sleep Deprived But Kinda Scared

A MyEpilepsyTeam Member asked a question 💭
Chadron, NE
A MyEpilepsyTeam Member

You're welcome,!!! I One question is this a self-taken pic of you having EEG test done? LOL

February 12
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