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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Fycompa" in Q&A. To see all results and access other features, sign up for free.

Opinions On Fycompa?

A MyEpilepsyTeam Member asked a question 💭
Oklahoma City, OK

My neurologist added Fycompa to my lamictal and vimpat. The lamictal and vimpat combo has worked pretty well for the most part, but I’ve had a few breakthroughs and serious insomnia. My neurologist said that lamictal can cause insomnia. I had no idea. I’ve been taking it for years, but I had also been taking medication to help me sleep up until a few months ago. I am nervous about starting Fycompa, but hopeful as well. He is going to ween me off lamictal completely over the next 6 weeks. Any… read more

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A MyEpilepsyTeam Member

Tammy Rudy how can you drive? They took my license first hospital visit.

Coming Off Fycompa Process?

A MyEpilepsyTeam Member asked a question 💭
Nambucca Heads, AU

Im about to come off fycompa because of some bad side effects. Has anyone stopped fycompa and is it quick and easy or painful?

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A MyEpilepsyTeam Member

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My Neurologist Has Now Changed Me From Clobazam To Fycompa. Has Anyone Noticed Any Drastic Side Effects To Fycompa?

A MyEpilepsyTeam Member asked a question 💭
Northern Ireland
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A MyEpilepsyTeam Member

Being increased to 4mg now after a month. Will keep trying the medication.

Good Evening, Does Anyone Use Fycompa ? I've Had Mouth Numbness Before, Due To Other The Meds. It's Happening Again. This Med Is New.

A MyEpilepsyTeam Member asked a question 💭
Detroit, MI

I've been taking this for about 2 1/2 weeks now. It was to replace my Keppra that the Epileptologist thinks is no longer useful.

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A MyEpilepsyTeam Member

I've just started Fycompa... 3 days now. Thank you for the warning.

Fycompa And Depression

A MyEpilepsyTeam Member asked a question 💭
Cypress, TX

My neurologist increased my Fycompa dosage from 2mg to 4mg at the beginning of the month. A week later, I started struggling with depression issues- feeling sad, angered, tired, helpless and feeling like I'm a failure. Is there a correlation?

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A MyEpilepsyTeam Member

I'm off of that medication now. Came off of it last Saturday and I'm feeling so much better. Less confused, more alert, and a lot less depressed. Had a zoom call with my neurologist yesterday. He… read more

Is Anyone On Fycompa? My Neurologist Has Advised He Will Be Changing Me From Clobazam So I'm Trying To Find Out If It Suits. Thank You.

A MyEpilepsyTeam Member asked a question 💭
Northern Ireland
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I Stopped Vimpat With No Problem. If A Medication Isn't Working Or Is Effecting Me, I Will Stop Taking It.

Stay Away From Fycompa. That Medication Is Evil

A MyEpilepsyTeam Member asked a question 💭
Plano, TX

I started taking Fycompa and boy it turns me into a grumpy a-hole. It also makes me so dizzy it feels like I just got off an amusement park ride. I'm talking to my doctor to see if I can stop taking it. But stay away..Worst. Medication. Ever.

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A MyEpilepsyTeam Member

I was on Tegretol/ X release for many years It worked well but then my body got used to it .My seizure pattern & frequency had changed anyway . Almost every med has bone/ joint issues as a side effect… read more

Bad Breath

A MyEpilepsyTeam Member asked a question 💭
New Orleans, LA

Does anyone suffer from bad breath on seizure meds?!! My son takes lamictal, fycompa and toprimate.

A MyEpilepsyTeam Member

I always wake up with morning breath { bad breath ). Although there are many times I’ve been told that I have smokers breath. That I know is from the Meds.

Hi Everyone, I've Just Spoken To My Neurologist Who Wants To Try Zebinix? Has Anyone Any Experience On This Medication?

A MyEpilepsyTeam Member asked a question 💭
Northern Ireland
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A MyEpilepsyTeam Member

Thank you all. I'm on sodium chloride tablets daily also so will be cautious regarding the sodium situation. I'm sure the doctor will do regular blood tests but I'll query the sodium issue. Fycompa is… read more

Fycompa Side Effects

A MyEpilepsyTeam Member asked a question 💭
Venice, FL

Is anyone else on Fycompa and dealing with negative side effects? I was placed on it in addition to Keppra, Carbatrol and Zonisamide and I have not been myself. Both my husband and I truly don't know if the Zonisamide has had any positive effects. My seizure activity has increased in the last 6 months and a Neurologist I see since moving to Florida from Chicago prescribed them. My husband has not been happy with the Neurologist.
LOL,
Bonny

A MyEpilepsyTeam Member

Frustrated with your doctor you never one thing unless you only have one doctor in that whole area then you may be stuck but still go to Google ants County radiologist go to the county you live in and… read more