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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Nayzilam" in Q&A. To see all results and access other features, sign up for free.

Does Anyone Have A Rescue Med At Home And If So, What Do You Use?

A MyEpilepsyTeam Member asked a question 💭
Jackson, TN
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A MyEpilepsyTeam Member

I have a seizure recovery med , that I use only as needed . It’s called Lorazepam ( generic brand of Ativan )

What's The Best Method And Most Common Rescue Med For Seizures?

A MyEpilepsyTeam Member asked a question 💭
Lanesboro, MN

I have had to different kinds one that's nasal spray and another that used a dropper.
The main reason I ask is the doctor prescribed one but the pharmacist says the other may be better, so is the Dr just prescribing one over the other to fill his pocket?

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A MyEpilepsyTeam Member

It could be that the two meds could work better than one medication alone. I have had that happen in the hopspital.

Is Anyone Using Nayzilam Or Any Other Rescue Med? If So, How Are You Doing With: Effectiveness, Side-effects?

A MyEpilepsyTeam Member asked a question 💭
Brownfield, ME
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A MyEpilepsyTeam Member

Oh yes, I know we all react differently. But getting actual feedback from those of you using the rescue meds gives me an idea of what you are experiencing, and not just what the drug companies put out… read more

What Do You Take For A Rescue Medicine?

A MyEpilepsyTeam Member asked a question 💭
Seattle, WA
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A MyEpilepsyTeam Member

Klonopin, I take lorazepam daily for anxiety so I feel that is just another layer of protection against my seizures.

Nayzilam

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I use slow-breathing and self-calming techniques. Once I have one, then I think to myself, "Calm down, slow down your heart rate, don't get over irritated and just stay calm". In other words… read more

What Is Tonic Clinic Seizure

A MyEpilepsyTeam Member asked a question 💭
Jourdanton, TX
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A MyEpilepsyTeam Member

I have had tonic clonic seizures from the get go. No aura, bad ictal phase. I have pretty bad bites to my tongue. I had one seizure from the standing position which was my worst as I stand almost 6… read more

Can Anybody Tell Me Anything About Epidolex,or Nayzilam.

A MyEpilepsyTeam Member asked a question 💭
Waynesboro, VA

Dr.thinks my daughter has Lennox syndrome on top of costello syndrome.Can anybody tell me about Epidolex,or Nayzilam,he is starting treatment wih these.Any help would be greatly appreciated!!!

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I Do Not How Many Of Us Get Frequent Flurries?

A MyEpilepsyTeam Member asked a question 💭
Piedmont, CA

They come on suddenly I cannot talk right ,my vision goes blurry , I try to ignore it, when more problems occur when I don’t recognize things. I let it ride. Ex. My husband asked me a question, I couldn’t communicate at all. He said to me go to bed!They stop for a few minutes and start the same thing. I took an Ativan to stop it. It lasted an hour! My friend called the Dr’s office for me . My phone blocked their message , they called my husband! Unblock the phone block unless you have #… read more

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A MyEpilepsyTeam Member

It is an absence. I have them .

What Is This Nasal Spay I Keep Hearing About?

A MyEpilepsyTeam Member asked a question 💭
Rehoboth, MA
A MyEpilepsyTeam Member

My Epileptologist explained it to me! I asked about Nasal spray. He said I like giving it to patients for generalized sz w/ aura. I like giving Ativan to patients w/ status.

Has Anyone Found A Good Anti-suffocation Pillow In The States? Whats Out There??

A MyEpilepsyTeam Member asked a question 💭
Indianola, IA

The 2 ive used/seen are from the Uk. Very slow and pricey shipping(50-150 shipping) These pillow are thin and go flatter even faster, my son hates them. So im searching for breathable pillows available here in the USA. Once someone mentioned the purple pillow, but its heavy(10 lbs) and made of the foam core stuff. I looked at a buckwheat pillow claiming to be the most breathable. Another concern is adding a pillow cover can negate the breathability(cotton) I think silk fiber is better. Id love… read more

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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Oh this is such a scary feeling which i understand completely. I think for the current time many people go without a pillow for safety and keep covers light/limited so they… read more