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What Do Everyone Think About Brain Surgery For My Epilepsy?
In 2004 surgery was suggested and I jumped on it, six months for recovery and have had minimal amount of seizures with my last one in December of 2011. I have been on Vimpat since 2012 and now the… read more
Taste
How many days after a seizure does your mouth return to tasting food. Everything at the moment taste sour
Nothing taste different to me, but I sometimes crave water when I'm having a strong aura. I start swollowing a lot too, even if I'm not drinking anything
Does Anyone Have Experience With The RNS Device? My Brother Has It Implanted And Is Doing Terrible With It.
He's having crazier ,strange seizures . His medication was supposed to decrease ,it's been played with and increased instead. His seizures are bizarre ,I'm sorry ,there's no other word to describe them. I'm His only care taker and it's scary. Should we get the device turned off?
@A MyEpilepsyTeam Member
I have had the RNS for 4 or 5 years. My medication never decreased. Doctors have adjusted the power multiple times which never caused me any harm. I wouldn’t have the device… read more
Have Any Of You Had A Lobotomy? Or The VNS Implant? And What Are Your Thoughts And Opinions On Both?
I've had both brain Sugery and VNS implant. The brain surgery helped decrease my seizure frequency down. They are still unpredictable and not 100% controlled with meds, but they are not as violent as… read more
I Was Not Able To Learn How To Add Or Subtract In School. I Have A Learning Disability. I Eventually Went To College And Graduated.
They called it Petit Mal when diagnosed at 7. In 6th grade before getting a Tutor I could not pay attention over 15 minutes. If I had to do any math in school, I could not do normal classes. Eventually in my 20s I was tested, and was found eligible to have a Temporal Lobectomy. I did it because there had never been control on meds. They called them Partial Complex. I was told by not having seizures on the right, other damage to the left dominant side did not take place. I am now controlled, but… read more
Personally I really do not like math and numbers at all. I am terrible at math. Other members of my family have no problem with math. But I took my math classes when I was in elementary and high… read more
I Feel Sudden Electric-shock Like Sensations, Intolerable Pain, Buzzing, Moving Across Shoulders, Neck & Down Spine??
Is it part of my parietal lobe seizures? Maybe focal aware? I have focal unaware mostly (complex partials), also simple focal aware (auras) of rt temporal parietal lobes, and sometimes bilateral to left side temporal parietal lobes also. Anyone ever experience this type of sensation or is it something else??
Here are all of the facts from the Experts at the Epilepsy Foundation and the US National Library of Medicine about seizures of all kinds but especially epileptic seizures
Epilepsy Foundation
… read more
Temporal Lobectomy
Is it possible to have a 2nd temporal lobectomy?
I was told that since seizures occur in the left temporal lobe, surgery is not an option, as it could make my memory problem worse.
Left Frontal Lobectomy
Left frontal lombectomy
Does Anyone Have Temporal Lobe Seizures Located On Right Side?
Prior to surgery I was taken off 2 drugs. They were counteracting with one another. Dosage increased after surgery.
Would I Still Be Classed As Having TLE After This?
Has anyone been diagnosed with TLE so you get focal, generalised TC seizures but later on had testing only to find out that some of the seizures you get are coming from other lobes in the brain not just the Temporal Lobe
This is basically what it looks like has happened to me.
Has anyone else had this or something similar happen? I'm just trying to figure out whether I would still be classed as having TLE after this or whether it's now something completely different.
To add some context to… read more
I initially was diagnosed left temporal lobe. They never did depth electrodes. After surgery I had status attacks! I had a second on my hippocampus left side! No depth electrodes. I moved to East… read more
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