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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "how do drs determine if dbs is an option" in Q&A. To see all results and access other features, sign up for free.

Epidiolex Has Anyone On This Forum Received And Tried Epidiolex CBD Oil ? Want To Hear About Your Expreince With It

A MyEpilepsyTeam Member asked a question 💭
Santa Monica, CA
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A MyEpilepsyTeam Member

I tried it once it last for about 7 to 8 months then my mouth started to get a nasty taste in my mouth every time I tuck it. I told my MD about it I stopped talking.

I’ve Just Started Taking Briviact - Anyone Have Anything Positive To Say About It ?

A MyEpilepsyTeam Member asked a question 💭
Canberra, AU

Dropping Lamotigine for Briviact........

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member as my main seizures are partial complex birivact has helped me withbthierlables and also with all the others I have suffered from ranging from petite to grand mal seziures… read more

We Tried Axiom For My Son And He Had Gotten A Rash. The Medication Seemed To Have Been Helping But We Stopped To Be Cautious.

A MyEpilepsyTeam Member asked a question 💭
Sacramento, CA

Now we have tried breviat and vimpat with no success. The doctor was not convinced it was a medication rash so we are weening off and going to reintroduce Axiom to my son. Has anyone had success with this medication. He has silent seizures coming from left lemperol lobe and has an aura before.

A MyEpilepsyTeam Member

what about www.koicbd.com . this stuff works for me and its has flavors to somewhat mask the oil.

Does Anybody Know If CBD Is Good For Depression And Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Blackpool, UK
A MyEpilepsyTeam Member

Can anyone help my nephew how to be able to get like an insurance he has seziures I need help to help him

How Has A VNS Helped Your Seizures For Those Who Have Got One? Any Troubles Or Side Effects?

A MyEpilepsyTeam Member asked a question 💭
Altamonte Springs, FL

My surgeon wants to give me a VNS. Has anyone had bad side effects or a bad recovery? If so what should I possibly look for? What has changed and has it helped your seizures

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A MyEpilepsyTeam Member

Less seizures with the Vns. I go months now.

When Do Frontal Lobe Seizures Become An Emergency?

A MyEpilepsyTeam Member asked a question 💭
New Jersey, NJ

Hey,

I've recently been experiencing some heavy break through seizures. Started November 28th and I have had seizures everyday since. Neuro is aware and I am on a med increase. I have frontal lobe seizures and recently she said sounds like I am starting to have temporal lobe involvement. Now it seems I am having some more involvement else where in the brain... maybe a repeat EEG coming up for me I am not sure.

When should I seek emergency help? I am a bit confused as I am usually partially… read more

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A MyEpilepsyTeam Member

Get yourself to a Seizure clinic where they have specialist for seizures
Usually at large Teaching hospital like UCLA
Your seizures are getting worse and immediate intervention is required
Change… read more

Has Anyone Tried Epidiolex The New CBD Med ?

A MyEpilepsyTeam Member asked a question 💭
Santa Monica, CA
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A MyEpilepsyTeam Member

Chris
I have been taking Briviact and Lamotragine. Epidiolex was available and my Doctor suggested it. The dosage was at first very small. We settled on is 2.5 ML, AM and PM. They would have liked me… read more

CBD Oils Vs. Epidiolex

A MyEpilepsyTeam Member asked a question 💭
Williamsburg, VA

My doctor has tried signing me up for the new Epidiolex CBD Oil. I have questions on these topics. Have any of you tried the new Epidiolex and haven't or had any seizures while taking this? What is the difference between this specific "Epidiolex" and other CBD Oils that could be offered?

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A MyEpilepsyTeam Member

Epidiolex is pure CBD Oil, no THC. I know what the dosage is exactly. My Neurologist or Epileptologist would not allow a CBD Oil bought from a store. We would not know how powerful it was, or what I… read more

Does Anyone Have Experience With Cbd Oil And Lamotrogine

A MyEpilepsyTeam Member asked a question 💭
Cape Town, ZA

Just wanting to find out more about the two drugs interaction together before I try the cbd. Smoking weed has put me into a complete anxiety panic and put me in a state of those last few seconds before the seizure occurs (but has never caused a seizure). I'm on a daily dose of 200mg Lamotrogine. Any thoughts appreciated!

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member cbd has different strengths. the oil i take is koi oil. there is 250, 500, 750, and 1,000 mg. i take 500. i also take keppra 500 and phenobarb 100. you may have the weaker cbd… read more

Has Anyone Used A Med That Works Well, Has Few Side Effects, And DOES NOT CAUSE HAIR LOSS?

A MyEpilepsyTeam Member asked a question 💭
Bluemont, VA

My son is 17 and on Lamictal. It's working, but he has incredible hair loss. Kepra did the same but didn't work for him.
Are there any good drugs that work well, have minimal side effects, and dont make your hair fall out? Thanks!

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A MyEpilepsyTeam Member

My 17yo son takes Lamictal too, but no hair loss that I can see. Hrs been on it for years though, and has his dad's very thick hair. Maybe try a biotin supplement?