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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

First Seizure Experience

A MyEpilepsyTeam Member asked a question 💭
Boston, MA

I read an article on here recently about how some experiences can be like PTSD. I used to only have my seizures at night, and then after I had my first one in public, it gave me a constant fear of having more. I often avoid social interactions because of it, and using tools like meditation, I have improved over the years, but the fear is not entirely gone. I get hot, anxiety, headaches, heartburn, stomach pains, tingling in my body, dizziness, and other things. One course I am taken asked us to… read more

June 23, 2023
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A MyEpilepsyTeam Member

Randy, I remember having a seizure in an office and i knew something wasnt right. Then my name was called and my mom was with with my daughter who was 2 or 3. I slowly felt it creeping up my legs, then my whole body shook. When it was over, i just wanted to go home but the paramedics insited i go to the hospital. I was on the stretcher but put my head down, embassed to look at everyone in that other room. I just wanted to get outta there.

June 26, 2023
A MyEpilepsyTeam Member

I was talking with a coworker and had a deja vu moment. She was just a talking, to this day I have no idea what she was talking about.
I didn't know at the time it was epilepsy. And the doctors kept telling me it was associated with my depression.
It took me 10 yrs before I was diagnosed.

October 12, 2023
A MyEpilepsyTeam Member

At the beginning when I seizured in public, yes it would be embarrassing. The thing with me is I loved being outdoors anywhere during the Spring, Summer and part of Fall. Seizuring outside and in public so often . I got use to it to my seizures in public , I would just get back up on my feet , wipe myself off, ignore everyone staring at me and go about my business.

June 26, 2023
A MyEpilepsyTeam Member

When I had my first sezuire it was a day before Halloween we where watching movies next thing I know I woke up in a hospital 4 days had gone by and my family at first thought I was playing a joke on them but once they saw I was going into convulsions time to call 911

December 2, 2023
A MyEpilepsyTeam Member

Completely understand. I will not shop in the same I live 8n. If I have any shopping I am in and out of stores asap. 8m anx

June 24, 2023

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