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Seizures Increase With Changing/new Medications?

A MyEpilepsyTeam Member asked a question 💭
York Haven, PA

My original medications I was on 4 years ago I was having seizures anywhere from 4-8 months based on documentation. I've gone through multiple changes over the years as the goal is to be seizure free. I am to the point of having a seizure every 2-3 weeks and just had one yesterday. My living conditions are the same and I do everything in my power to prevent them. Have any of you ever gone back on previous medication that was helping you better?

I sent my doctor a message today about everything… read more

March 17
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A MyEpilepsyTeam Member

Yep,
A while back my md wanted to seebif a different drug would hold me better. Needless to say, it didn’t & after a couple months i complained & it was switched back. A new drug doesn't always mean better.
I hope you get back to where you need

March 20
A MyEpilepsyTeam Member

When I was changing over from Tegretol to Keppra it was the worst. It's hard to say wether I had any a seizure during this time or not but regardless during a med change the chances of a seizure happening are very high. My issue was, I'm noting down events even events that most likely were not seizures, and I was doing it for almost 12 months even before the changeover. So it was hard to confirm the notes. I would say out of everything I noted down and there was alot there was maybe 5-6 seizures out of everything I recorded. Having said that though some of the seizure events that I'm pretty sure are seizures are around the time when I was changing meds. Since changing though- 6 months on its alot better now, but I also do things a lot different now.

March 20
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member That is how I am going. None of the medication they have switched me to has controlled it. The original medication I would go at least 4 months without a seizure and sometimes a year. Since they started tweaking medication I have been once a month at least. I'd be fine every 4-12 months vs once a month or more.

March 19
A MyEpilepsyTeam Member

I have gone back on a former medication, along with many other medications. Non of the medications onto present day never were able to control my seizures 100%.. I found out that I have Refractory Epilepsy ( my body resists the meds ) . The medication may work for awhile, but not long, then my body starts adapting to it and a seizure would start to sneak in .

March 19
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A MyEpilepsyTeam Member

Changing medication can and will definitely affect you, either for better or for worse. Sometimes the POSITIVE changes (fewer, less intense seizures) will only be temporary, too. Once you get used to the new stuff it won't work as well. It can't! Really, the factor to consider here is CHANGE, whether medication or anything else. Changing time zones, place of residence, new girlfriends, etc. will tend to lead you to have more seizures, because it will alter your homeostasis.

March 17

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