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Do The Seizure Apps Work On Apple Watch?

A MyEpilepsyTeam Member asked a question 💭
New Jersey, NJ
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Does Epilepsy Cause Fatigue And Tiredness

A MyEpilepsyTeam Member asked a question 💭
Okeechobee, FL
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A MyEpilepsyTeam Member

Yes, both the condition and the side effects of the medications! .

Does Anyone Have Mood Swings On Pills They're Currently On?

A MyEpilepsyTeam Member asked a question 💭
Indianapolis, IN

I'd like to know how people deal with their mood swings I'm bipolar. My mood was okay at first. I could handle them, But now since I got on Levetiracetam as known as Keppra my mood has been so bad it's like I'm happy one minute next I'm crying then just angry for no reason. My doctor knows and I want to go to a mental health doctor and see what they can do. Please Help Me

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A MyEpilepsyTeam Member

Wow. I never knew that.

Midazolam

A MyEpilepsyTeam Member asked a question 💭
Adelaide, AU

I've just explored the site a little more. I came across the epilepsy association medication list and found diazepam rectal gel listed but no intranasal midazolam?? I realise the majority of people here aren't Australians, so perhaps it's something not used often overseas
I still occasionally have a very large grand mal that requires medication to bring me around, but I was put onto using intranasal midazolam years ago
Prior to the midazolam all my partner could use during a large grand mal… read more

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A MyEpilepsyTeam Member

It’s a benzodiazepine. I have had it used on me a couple times. It works and beats a hospital visit any day. I can’t self medicate with it so there is no concern of addiction. My nose was a little… read more

To

A MyEpilepsyTeam Member asked a question 💭
Brisbane, AU

Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I don't know of anyone on this but having said that there are a lot of people that are still on one old drug and one modern drug because it works. I was on Tegretol & Topamax… read more

Who Is Eligible For VNS?

A MyEpilepsyTeam Member asked a question 💭
Roachdale, IN

What kind of seizures does VNS help reduce? What "requirements" must you meet to have it? I see my neurologist next week and I'm going to ask him about it. I thought I would get your opinions first.

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A MyEpilepsyTeam Member

Hi, I have a VNS but I’ve had it deactivated as the vagus nerve also assists with the respiratory and digestive systems, if I exerted myself I had problems breathing, despite trying different… read more

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Keppra And Frisium During Pregnancy

A MyEpilepsyTeam Member asked a question 💭
Melbourne, AU

Hi Everyone,

I've had JME epilepsy for 20 years. I was always on Epilim which kept me pretty well seizure free. A while back, my fiancé and I decided that we would change meds as recommended by my neurologist so that we can have a baby.

It wasn't as easy as first expected and I had a couple of seizures, trying to transfer over to Keppra. My neuro added Frisium which seems to have worked and I'm now over a year seizure free.

I am also now 19 weeks pregnant. Reaching the half way mark, I am… read more

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A MyEpilepsyTeam Member

Epilepsy can also be hereditary. Pregnant women are just guinea pigs right now. Too scary for me to get pregnant. They don't know enough yet. I can't have a child who has more problems than me. If… read more

Does Anyone Know What, If Any, Fillers Are Used In Generic Medicines?

A MyEpilepsyTeam Member asked a question 💭
Salisbury, AU

Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?

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A MyEpilepsyTeam Member

Tell you neurologist. could be too much sun and heat or it may be time for a different med. 7 years of the same one and my body got use to it and no longer worked. had to change meds.

Seizure Diary

A MyEpilepsyTeam Member asked a question 💭
Melton West, AU

Can anyone suggest a good seizure diary app compatible for iphone? Thanks

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A MyEpilepsyTeam Member

Cell phones give me seizures. I have to enlarge the font and then it is the side to side, up and down thing, repetitive and fast that my brain hates. Am I the only one in the world that gets a seizure… read more

Pregnancy And Epilepsy Medicines?

A MyEpilepsyTeam Member asked a question 💭
New York, NY

I'm on several epilepsy meds and have been warned that pregnancy could be dangerous and high risk. My seizures are still uncontrolled, mostly complex partial/secondarily generalized. Was wondering if any women suffering from uncontrolled seizures and/or on Dilantin, Vimpat and/or Lamictal have had children, and if so, what your experiences were? I want kids more than anything :(

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A MyEpilepsyTeam Member

I was on phenobarbital during my pregnancy and didn't have any problems. I gave birth to a perfectly normal child. My son did have some trouble with global delays in his development, but early… read more