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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Aspects Of Epilepsy Are You Grateful For And Worried About Lately?

By A MyEpilepsyTeam Member 218 answers

What Are Your Top Tips For Dealing With Epilepsy In The Heat?

By A MyEpilepsyTeam Member 130 answers

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 163 answers

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member 163 answers
12473 questions

Does Anyones Faith Carry Them When Everything Else Is Bleak

A MyEpilepsyTeam Member asked a question 💭
Fallon, NV

Please I need some inspirational stories I love em they fuel me

A MyEpilepsyTeam Member

God would never put anything on your back that you couldn’t carry! So as Francis2 said show that happy love from God when you have something hard,(that Jesus can help you with) to others. You never… read more

February 27, 2023

Can Anyone Tell Me About Their Experience With Myoclonic Jerks?

A MyEpilepsyTeam Member asked a question 💭
Cleveland, OH

In the past, once in a great while I would feel a little jerk. Something like a reflex test. But more and more often, I'm going through these cycles. Especially when going to or waking up from sleep. Is something causing this?

A MyEpilepsyTeam Member

I get them in my sleep I suffer with seizures so it's like a weird body jerk sometimes..always getting blood test done

July 8, 2023

Help And More Understanding

A MyEpilepsyTeam Member asked a question 💭
England, AR

I feel because we look normal 😃 people who don't understand think we make it up or drama queen it s the unseen illness and that's why we have to fight so hard and be strong apart from the epilepsy site what else we got ever were is closed 🔒 or hour or so away no good bless everyone don't let epilepsy beat or control you you control it with each other help we will get there walk tall never be ashamed to say you got epilepsy

A MyEpilepsyTeam Member

That's what I think 😏 everybody on here keep doing well 👊

January 6, 2023

Would Any Of You Like To Pick A Spot And Meet In Person, As A Group, Maybe Sometime After The Holidays?

A MyEpilepsyTeam Member asked a question 💭
Broken Arrow, OK

I would truly love to meet all of you. Hopefully some day in person and thank you for the help and support that you all have given me. That helps keep me going at times, only because my cats don't talk back and my Dr says they shouldn't & if ever they do, I need to call him first.

A MyEpilepsyTeam Member

Stephanie, I am here in the Tulsa area. The next few weeks are kind of busy for me, but I would be interested in chatting

January 10, 2023

If You Need To Talk

A MyEpilepsyTeam Member asked a question 💭
Gloversville, NY

If everyone has Facebook and want to be Facebook friends just add it's Stacy Lynn Kane

A MyEpilepsyTeam Member

80 yrs old.
I get 8-10 hrs of sleep per day.
It helps. I like getting an afternoon nap.

Do you take supplements ? Which ones?

December 10, 2022

All I Feel Is Shocked

A MyEpilepsyTeam Member asked a question 💭
Maspeth, NY

What should I do if I was looking so forward to things but am getting nervous, stressing myself and not happy seizures are increasing a little .

A MyEpilepsyTeam Member

Try to remember to relax

May 6, 2023

Time Change

A MyEpilepsyTeam Member asked a question 💭
Herkimer, NY

Hi I hope everyone is doing good.. my granddaughter age 4 started having uncontrollable seizures & different seizure combinations this year, after trying different Med combinations, she’s currently been having success with Vimpat genetic & deprakote sprinkles & levocarnitine..We had the time change, falling back & noticed she seems off..we’re wondering does this affect anyone else? & how often are your levels monitored?

A MyEpilepsyTeam Member

Thank you all, yes your 👍🏻 RS, will do..& Vhiker I agree I’m not a fan of the falling back & springing ahead either.. I like the extra hr sleep tho if I get it..😃

November 8, 2022

Mexidol (emoxypine) For Better Thinking

A MyEpilepsyTeam Member asked a question 💭
Moscow, KS

Hi everybody! Hope that you've had a seizure free day today!
I wonder if anyone has been taking Mexidol for embettering your cognitive functions, short term memory loss for example. And if you did, please share how it worked with your anti-seizure drug.

A MyEpilepsyTeam Member

It seems to be a promising complimentary treatment for many epilepsy related conditions. I thought it would be an Rx not merely a supplement. I will have to try it out. I wonder if its even available… read more

February 6, 2023
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What Medicine Is Safe For Pregnacy

A MyEpilepsyTeam Member asked a question 💭
Gardnerville, NV

I am on briviact lamotrigine zonisamide. I hate the zonisamide and the briviact is $300 with insurance but i want to have more kids And need somthing safe any sugestions i am at a loss.

A MyEpilepsyTeam Member

If You have any questions about medication there are two things You can do right now: At Your next Dr.s appointment bring a list of questions You want to ask, give those questions to Your Dr. ask… read more

November 26, 2022

Can Seizures Or Seizure Medicine Cause Balance Issues (ie Walking Foot To Foot In A Straight Line)

A MyEpilepsyTeam Member asked a question 💭
Katy, TX
A MyEpilepsyTeam Member

Yes that’s one of the medications I take. Thanks for the feedback

January 4, 2023
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