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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member 269 answers

What Are Your Top Tips For Dealing With Epilepsy In The Heat?

By A MyEpilepsyTeam Member 130 answers

Are You Frustrated With Finding Effective Treatments For Epilepsy?

By A MyEpilepsyTeam Member 167 answers

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member 163 answers
12488 questions

I Use "myepilepsyteam," Yet I Also Receive Notes On My E-Mails

A MyEpilepsyTeam Member asked a question 💭
Farmington, MO

Is it normal to receive "myepilepsyteam & on my E-Mail also??

A MyEpilepsyTeam Member

No need to apologise... I have set up a shortcut icon on my laptop, which takes me to My Epilepsy Team straight away... I find this is easier!

July 8, 2018

How Do I Get My Dog Certified As A Service Dog

A MyEpilepsyTeam Member asked a question 💭
Nescopeck, PA

I have a dog that I have had his whole life and he can tell Everytime I am going to have a seizure before I even know some times. I would like to get him certified as a service dog.

A MyEpilepsyTeam Member

Thank you, i had the same question=)

July 1, 2018

Do Many Of You Get Violent When Coming Round From A Tonic Clonic?

A MyEpilepsyTeam Member asked a question 💭
Dumfries and Galloway, Scotland

My wife has had epilepsy for 28 years but last 10 years it got worse then progressed further these last 5 where seizures were at least 5 different kinds including occasional clusters of tonic clonic, sometimes she gets violent when coming round from a tonic clonic, she is normally disoriented and determined to get up but is too unsteady to walk and would fall over so l gently coax her into lying down for at least 10 mins but last seizure she was not for staying still and lashed out screaming… read more

A MyEpilepsyTeam Member

My son gets violent after his seizures. He's around 6ft 2 and 230 lbs. Impossible for one person to control.

June 1, 2018

Disability

A MyEpilepsyTeam Member asked a question 💭
Kenosha, WI

I was denied again for Disability! I been trying for this since 2012 and still no luck. They say i am capable of taking care of myself since my seizure medications are doing good for a few years. Can they do that to one knowing we have Epilepsy and strive daily just to stay on point? It really disappointed me because we are asking for help and well my neighbor got Disability were he ain't suppose to do any type of work and he is doing side jobs cleaning construction work at homes and cleaning… read more

A MyEpilepsyTeam Member

LaRonda it would bother me too if I saw a person get on disability and then saw them getting paid for all those side jobs!!!! Those really are the kinda people that are apparently not really disabled… read more

August 15, 2023

Where Can I Share My Epilepsy Story Other Than Facebook?

A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

I shared my story on facebook last month but I want to share it agaib and touch more people around the world with Epilepsy, Anxiety and Depression. I want them to realize that they are normal and there's nothing to be ashamed of.

A MyEpilepsyTeam Member

Your more than welcome to post about it on my epilepsy page

May 16, 2018

Dilantin

A MyEpilepsyTeam Member asked a question 💭
Kenosha, WI

I used to take Dilantin, but got switched to Phenytoin. Is there a difference on these 2 meds that i dont know about?

A MyEpilepsyTeam Member

Yes they the same

April 16, 2018

Does Anyone Suffer With Agoraphobia?

A MyEpilepsyTeam Member asked a question 💭
Worthing, UK

does epilepsy bring on agoraphobia?
I'm asking because i'm starting to feel nervous about being around people as in crowds and am more comftable on my own in my home. I will go to places I know but only on my own.
I don't go out anymore in the evenings and just do what I need to do in the day and then get home.
I do get panic attacks do I bring it up with my doctor?

A MyEpilepsyTeam Member

Thanks everyone for the helpful answers and suggestions and will look into this a lot more

March 22, 2018

Can EEg's Sometimes Be Wrong?

A MyEpilepsyTeam Member asked a question 💭
Sinfin

About a year ago my neurologist diagnosed me with non epileptic seizures. After I had a few days eeg
(Was supposed to be a full week but because I kept having seizures at the start they couldn't attach the wires and what not.)

But after that he told me they were non epileptic, He's took me off my meds and I still have seizures (Still waiting on appointment) However, when I first saw him when I was 19, he got my scans and noticed I have multiple places of minor brain damage and fractures… read more

A MyEpilepsyTeam Member

You could have physiological non-epileptic seizures. They are less common than psychogenic seizures and are often not considered during treatment. My neuropsychologist never even heard of them until… read more

March 22, 2018

What If The Cure To Drug Resistant Epilepsy Was Food? Ask You Doc About The Keto/ MAD Diet.

A MyEpilepsyTeam Member asked a question 💭
Mount Pocono, PA
A MyEpilepsyTeam Member

I have had tonic clonic uncontrolled seizures for a total of 16 years. I have been on several different meds and been tested for brain surgery and been denied. Finally i pushed for the MAD/Keto Diet… read more

July 6, 2021
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Vision After Seizure

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

Has anyone experienced problems with their vision after a seizure? especially those who wear glasses?

A MyEpilepsyTeam Member

I took Vimpat for awhile along while I had been also taking Trileptal and lamictal
I also have the VNS
With Vimpat i was on that i was run into the walls alot along with falling and cognition was… read more

March 1, 2018
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