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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 95 answers

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member 163 answers

What Aspects Of Epilepsy Are You Grateful For And Worried About Lately?

By A MyEpilepsyTeam Member 218 answers

What's A Common Misconception About Epilepsy?

By A MyEpilepsyTeam Member 304 answers
12491 questions

EEG

A MyEpilepsyTeam Member asked a question 💭
Raynham, MA

Can someone please explain to me after having seizures for 30 years my most recent eeg came back with no abnormalities. Strange.

A MyEpilepsyTeam Member

Yep

August 24, 2017

Reading

A MyEpilepsyTeam Member asked a question 💭
Raynham, MA

I loved to read but does anyone have to go back and reread paragraphs or pages to remember what you've read? So frustrating!!!

A MyEpilepsyTeam Member

Your not alone

August 1, 2017

Can't Live Without You

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

We all suffer in different ways because of epilepsy. A condition that has changed and for some distroid our lives. But there are people who are partners, parents or friends that we can't live without. So use this question to put the name of that special person.

For me my wife and carer Faye. xxx

A MyEpilepsyTeam Member

i have a long list of people i can't live without. 1st of all my mom, step dad, and dad. my brother and my sister. then there is my aunts, uncles, and cousins. then there is my 2nd aunts, uncles, and… read more

August 20, 2017

How Many Types Of Seizures Do You Get? And What Types?

A MyEpilepsyTeam Member asked a question 💭
Ontario, CA

I get 4 types, grand mal, absence, clonic and simple partical where im fully awake but unable to speak

A MyEpilepsyTeam Member

Riley has Tonic-clonic, myoclonic seizures and then she also has medically unexplained syncope. It is not unusual for her seizures to last 15 minutes. Her syncope can last 3 hours.

October 15, 2019

Somewhat Of A Random But Serious Question.

A MyEpilepsyTeam Member asked a question 💭
Albemarle, NC

I want to know how many other people this has happened to.

About 3.5-4 years ago, I had a seizure and the ambulance took me to the hospital. Well, they upped the dosage Tegretol that I was taking at the time. Well, I went back home and I took my medicine as prescribed. I started feeling weird a couple days later. I had my mom take me back to the hospital. They said that I was good. Next day, I felt worst. Something was off. I kept having moments where I felt like I was going to fall into the… read more

A MyEpilepsyTeam Member

Yes, a few months ago I felt a little off and I called my dr and he said to take an extra pill right then and then come in for lab work. I did and my Keppra level was too high so he lowered my dose.

August 13, 2017

How Many Of You Have Had A Seizure From Doing A HIIT (high Intensity Interval Training) Workout?

A MyEpilepsyTeam Member asked a question 💭
Laughlin, NV

I workout regularly and today I tried a new workout. It was a hiit workout (high intensity interval training) from turbo fire with chalene johnson. I thoughtit was really fun! Th re n I was thinking that was reallyfuuuunnn... Wowwww. Slow motion then I was walking. Then all of the sudden my son is telling me to just get up off of the floor. I looked around eberything wasin slow motion and I was laying on the floor. Apparently I had a drop seizure. When I was able to get up I stumbled my way into… read more

A MyEpilepsyTeam Member

I do know , if your mind and body isn’t use t high endurance type workouts and exercise, it can cause stress ,which can trigger seizures.

Best way t go is start out mild or moderate the increase a… read more

January 17, 2023

Partial/absence Auras?

A MyEpilepsyTeam Member asked a question 💭
Kawkawlin, MI

sometimes when I get a little confused I'm afraid I had a absence/partial seizure and didn't realize it. For those of you with complex partial and/or absence seizures: what are your auras like? How do you know?

A MyEpilepsyTeam Member

I have ' non convulsive focal partial seizures with impaired awareness ' Back to back for 24 hours - status.I can't say I have any auras that I know of so On the odd occasion I may feel sick but… read more

March 10, 2020

Postictal States

A MyEpilepsyTeam Member asked a question 💭
Albuquerque, NM

I have grand mal and myoclonic seizures, has anyone ever lost their ability to speak after a seizure? In my postictal state I could understand what people were saying and was only a little foggy, but if I tried to speak nothing would come out. I could communicate by writing, it was messy but I could still write.

A MyEpilepsyTeam Member

Yep yep

April 23, 2023

Seizures

A MyEpilepsyTeam Member asked a question 💭
Cramlington, UK

Hi has anyone ever been knocked out unconiouse while in the bath or shower Before as for me I've had them in the bath and shower which is one of the places where I have mine and the other is when in the bedroom

A MyEpilepsyTeam Member

I have had two in the shower. First one feel and broke ribs. Second one hit the hot water handle and got 3rd degree burns on my leg. Was home alone and I just lay there with the HOT water burning me… read more

May 7, 2017

Any New Friends?

A MyEpilepsyTeam Member asked a question 💭
Jackson, MS

I am very sorry about what has happened. I totally understand what you are feeling. And although there are many others out there that do not come near to understanding how we feel or even try, please know that keeping my faith, ignoring the ignorance of those who don't know, and finding a true friend that cares about me and listens to me while I'm in pain really helps me. So if you are looking for a new best friend or just someone who will listen, IM HERE FOR YOU OR ANYONE ELSE WHO SEES THIS… read more

A MyEpilepsyTeam Member

Love Life Be Happy have confidence get the diet , stress and fitness under control and be happy

April 16, 2017
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