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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Notice That Singing Helps You Feel Better?

By A MyEpilepsyTeam Member 66 answers

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 165 answers

What's A Common Misconception About Epilepsy?

By A MyEpilepsyTeam Member 302 answers

What Is Your #TopTip For Living Better With Epilepsy?

By A MyEpilepsyTeam Member 56 answers
12435 questions

If You Have The Choice To Hide Your Epilepsy... But Don't... Could You Please Comment?

A MyEpilepsyTeam Member asked a question 💭
Weston, MA

I'd love to pick your brains on why you decided to do so and how your openness has been received. I'm committed to helping people with epilepsy who now hide it to "come out of the closet." Knowing your experiences could give me the education I need to succeed. Thanks!

A MyEpilepsyTeam Member

It's definitely tough sometimes, but I try to be empowered by my condition. I know not everyone has to deal with chronic illness or disability, but for those of us who do, take pride in the strength… read more

March 14

Women - Do Hormone Changes Throughout The Month Affect Your Seizure Threshold?

A MyEpilepsyTeam Member asked a question 💭
Amarillo, TX

If so, which part of the month? Have you had any form of treatment to control hormones? Birth control?

A MyEpilepsyTeam Member

The Nexplanon is an Implant that goes up under your skin somewhere in part of your arm. I still haven't started with it just yet. My insurance would not cover it, that's the only problem.

March 8, 2021

What Is The Silliest Thing You’ve Ever Done That Made You Or Anybody Else Laugh?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

The other counselor warned me that the girls at the group home for wards of the court where we worked were really mad and my shift would be as disastrous as hers. So! I bought a long skinny cigar at a fancy smoke shop and lit it up at the breakfast table. Laughter erupted! They did funny skits and we all cracked up when my cigar smoking made me so ill I applauded their acting while lying down on the couch. First and last time I smoked anything.

A MyEpilepsyTeam Member

Fell at work. I was embarrassed but we laughed

19 hours ago

What Kinds Of Music Help You Stay Healthy?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

The Dave Brubeck Quartet! No words. Just jazz wow!

A MyEpilepsyTeam Member

All kinds but mostly rock.

September 14

What Precautions Do You Take In A Heat Wave With High Humidity?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

I drink plenty of water. Any grocery shopping or cooking is done in the coolest part of the day. Dog walks are less than 5 minutes. Do I exercise? No!

A MyEpilepsyTeam Member

I live in Sacramento

July 14

Can Standing Up To Quickly Cause Lightheadedness? Could This Be From Medications Or Another Possible Medical Issue?

A MyEpilepsyTeam Member asked a question 💭
Katy, TX
A MyEpilepsyTeam Member

Look up POTS

April 30

Do You Think That They Should Do Away With Daylight Savings Time, And If So How Would It Effect You If They Did?

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

Just curious

A MyEpilepsyTeam Member

Daylight savings time has a plus for parents of children. .Season of FALL for example , is a good thing to bring time back one hour . It gives the illusion that bedtime is coming close , to get the… read more

March 25

Others Health Issues

A MyEpilepsyTeam Member asked a question 💭
Pittsboro, NC

I know I am a cranky old cow, but do you hate listening to others complain endlessly about an ingrown toenail, a pulled hammy, a cold, etc? I think you are so lucky that is all you are dealing with.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Love It!!

March 25

Do You Have A Good Sense Of Humor?

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

I have one but not like before, so what are your thoughts and such etc about the question here

A MyEpilepsyTeam Member

I have to have one. How else do you get through the day?

June 12

Does Anyone Do Lip Smacking While Having Seizure?

A MyEpilepsyTeam Member asked a question 💭
Murfreesboro, TN
A MyEpilepsyTeam Member

Yes I’m told by my wife that I do this. I am not aware of it though. It’s how my can confirm I’ve had a seizure which I already confirmed. Strange I think.

February 12
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