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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?

By A MyEpilepsyTeam Member 158 answers

Does Anyone Else Get Depressed Listening To Other Family Members Talk About Their Perfect Happy Lives When You Don’t Have Any Of It?

By A MyEpilepsyTeam Member 76 answers

Are You Frustrated With Finding Effective Treatments For Epilepsy?

By A MyEpilepsyTeam Member 165 answers

Has Your Life Changed For The Positive Since Making Friends Here?

By A MyEpilepsyTeam Member 88 answers
12368 questions

Has Anyone Else Studied Something All Night And Never Could Remember It But When You Woke Up The Next Morning You Knew It All?

A MyEpilepsyTeam Member asked a question 💭
Kansas City, KS

When I was in school I had to memorize a few speeches. I studied all night but never could get it down. So I went to bed. The next morning I knew it all as soon as I woke up.

A MyEpilepsyTeam Member

I get that type of stuff a lot man. Hurts like hell when I get that. So annoying 😂 I had that stuff under control so much better 😂 bout to become a doctor cause this is getting so annoying to deal… read more

August 23, 2023

Who And Why Do The Name Of Seizures Change?

A MyEpilepsyTeam Member asked a question 💭
Stamford, CT

My seizures were called Petit-Mal as a child. Later Partial , then Absence Seizures. I was recently told they are Partial Awareness Seizures.

I would like to know who does the naming as well.

Leslie Weinberg

A MyEpilepsyTeam Member

We are in October 2023 now.

October 8, 2023

Does Anybody Else Tend To Wake Up 4 Or 5 Hours Early Every Morning Following A Day You Had A Seizure And Not Be Able To Fall Back Asleep?

A MyEpilepsyTeam Member asked a question 💭
Kansas City, KS

When I was a child there were a lot of mornings where I woke up at 4 or 5 o’clock and couldn’t fall back asleep. My mom noticed it was always the morning after I had a seizure. It got to where every morning I woke up early I’d tell my mom “I had a seizure yesterday didn’t I? The answer would always be yes.

A MyEpilepsyTeam Member

I am actually the opposite, I sleep more than usual. I sleep shortly after the seizure and I sleep all through the night.

July 10, 2023

Best Epilepsy Medications/Most Common/Most Effective

A MyEpilepsyTeam Member asked a question 💭
Los Gatos, CA

Do you know the most popular/common/effective Epilepsy Medications? Based on your personal experience, which ones have worked for you?

A MyEpilepsyTeam Member

My meds are ok, but my faith in my life and my routine of prayer and bible study are the best for me, I am not perfect and do sin, but is my answer here

February 17

What Are New Life Hacks You've Learned To Manage Your Life With Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Great to hear! Now, if only we could get that out to all new epileptics and supporting family members.

September 20, 2023

Medical Arm Bracelets

A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

Do you find wearing these give you piece of mind ?
I've just ordered 2 one for my asthma and one to say I have a seizure disorder just in case if I'm on my own and have a seizure people can know what's going on .

A MyEpilepsyTeam Member

I have a medical dog tag with all relevant information on it
I also have a medical alert app that gives a EMT all the information they need
Witch includes medications and contact information. The… read more

April 27, 2023

Have You Ever?

A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

I'm just wondering has anyone had a seizure during a doctor's appointment?

I'm asking this question as I've heard a youtube neurologist say it's very rare for a seizure to happen at a doctor's office.
But aren't seizures unpredictable and can happen anywhere so I'm confused about this statement.

A MyEpilepsyTeam Member

Initially no where when the sz were not common in my life! I have had them everywhere! Airport, school, dr’s office, crossing a street! Everywhere! I have been blessed with no serious injuries accept… read more

6 hours ago

Has Anyone Found That Taking Medication Made By A Different Brand Has Had Different Side Affects Or Not As Effective?

A MyEpilepsyTeam Member asked a question 💭
London, UK

I've been taking Leveteracetam for years however I've noticed when it's not Keppra I have different side affects and the medication doesn't work that well for me. I insisted that I have Keppra as I know how my brain and body feels different when the brand is any other. I've been told before that the ingredients are the same it's just different branding and packaging. And recently that Keppra is more expensive which for me says there is probably a difference in the ingredients.

A MyEpilepsyTeam Member

That did happen to me. The company that was giving me my medication decided to save some money so they changed my medication to generic medication instead of brand name. Shortly after the generic… read more

June 7, 2023

Seizure Journal?

A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

How do you record your seizures and symptoms I would like to start doing that so I can explain in detail what happens to me during a seizure I know videos help and I have that covered but I remember a previous neurologist asked me to describe to him what happens during your seizure and I couldn't really tell him much.
Is there a template or journal you can purchase to help with that?

A MyEpilepsyTeam Member

I use the epsy app that I found at the google play store

March 24

Can Stress Bring On A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Bronx, NY
A MyEpilepsyTeam Member

Stress is a very big trigger for seizures. When I was in college during finals I noticed the level of stress increased all over the campus even with the people that did not have epilepsy. When… read more

March 4, 2023
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