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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Has Your Life Changed For The Positive Since Making Friends Here?

By A MyEpilepsyTeam Member 88 answers

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 163 answers

What Epilepsy Symptoms Keep You Up At Night?

By A MyEpilepsyTeam Member 222 answers

What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?

By A MyEpilepsyTeam Member 158 answers
12370 questions

Hair Loss With Medications.

A MyEpilepsyTeam Member asked a question 💭
Little Rock, AR

I have been on Depakote ER for some time. And just recently found out that the Depakote that I have been taking for my Epilepsy is what could be causing my hair loss. Has anyone else had this problem?

A MyEpilepsyTeam Member

My hair started falling out and I got on some hair stuff that I Googled to be the top to get it to return, it has a guarantee for money get back at if 3 months didn't work and by 3 months it's now… read more

December 13, 2023

Does Anyone Else Have Sharp Stabbing Pains On One Side Of The Head?

A MyEpilepsyTeam Member asked a question 💭
Clyde, NY

Mine are on the left side where my seizures come from they say and I'm not sure what causes it. Just looking for help. Thank you.

A MyEpilepsyTeam Member

I get extreme pain the left side of my head due to nerves being cut during a brain surgery. It was already determined the pain could be managed so we are moving forward with managing the pain every… read more

August 1 (edited)
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Has Your Type Of Epilepsy Changed Over The Years?

A MyEpilepsyTeam Member asked a question 💭
New York, NY

I at one time was told I had grand mal, then went to petite mal now I'm told I have generalized primary seizures. I tend to not understand how this is possible and wonder could doctors misinformed me or is it actually possible for the diagnosis to continuously changed and why/how does this happen. what causes this?

A MyEpilepsyTeam Member

Yes the seizures can change. Mine did from absent to complex to complex and fall.

March 12

Epilepsy Vs Cancer

A MyEpilepsyTeam Member asked a question 💭
London, UK

No matter how epilepsy makes me feel and the ignorance of people 😏 I will always bounce back stronger then ever before. 💪 ✌👌 I had ignorance my whole life due to this unfortunate condition 🙈😢

The question I always ask myself is how I'm I any different to a cancer suffer?! They both the same, they both invisible and heartbrokening illnesses & they both very deadly.😬

The ONLY difference is that epilepsy is NOT as recognized as much as cancer!!! There are 40 different types of seizures not all… read more

A MyEpilepsyTeam Member

I went through Cancer at 24 Yrs old. 3 years in the hospital and surgically removed Lymphatic system and testicle. I personally kept most of it to myself. BUT - with the seizures i am sure to keep… read more

February 12, 2017

Do You Know Your Triggers For Your Seizures?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

Some people know exactly what will trigger their seizures. For example, some people have seizures which are triggered by strobe lights. Others are triggered by music. Others are triggered by additional stress (especially during high stress periods like certain holiday seasons or high stress events). I know that there is an increased chance of triggering a seizure if I do not keep my mind distracted from thinking of things, events, etc. that are high stress events for me, i.e. large gathering… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member It can be a real challenge especially since new ones can be added over time. It just makes it extra challenging to try to avoid triggering them if you don't know the… read more

February 4, 2020

Does Anyone Know What, If Any, Fillers Are Used In Generic Medicines?

A MyEpilepsyTeam Member asked a question 💭
Salisbury, AU

Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?

A MyEpilepsyTeam Member

All of my meds are in generic my insurance will not paid for brand name

February 2

Being A Mother With Epilepsy With A Two Year Old.. How Do Parent With Epilepsy And Feel Confident Of Being By Yourself With Your Child.

A MyEpilepsyTeam Member asked a question 💭
Perth, AU

How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a mother
Is anyone else in this position or know how it feels? My parents help us but they are now in their 70's. They… read more

A MyEpilepsyTeam Member

I tried my best to teach my 2 children what to do in case Mommy 'falls down and spits' but it's very hard for children to understand and most times neighbors used to hear them screaming and knew I had… read more

July 18

Anyone Interested In Wanting To Get Rid Of Seizures???

A MyEpilepsyTeam Member asked a question 💭
Melbourne, FL

I started having seizures at the age of 3. Grand Mal seizures. They always happened in the morning when I woke up. Had plenty of eegs and tried a lot of meds. Nothing totally worked until I was about 14 years old. My seizures stopped and I never had another one. I was married, had 3 kids, divorced and now I m almost 56 and have not had a seizure in years. I recently found out after talking to many Drs why they stopped. At the age of 14 I started smoking pot. Enjoyed in for years. My Dr… read more

A MyEpilepsyTeam Member

I'm happy to hear that pot helped control your seizures. But keep in mind , even thought there's minimal side effects and helps many other people control their seizures , there still are a handful or… read more

November 20, 2016

Epilepsy

A MyEpilepsyTeam Member asked a question 💭
London, UK

Is an aura actually a seizure?

A MyEpilepsyTeam Member

Yes! It is generally the beginning of the Brain Activity before it spreads to your whole Brain (more or less) or specific parts, depending on which, can the generate more Seizure activity; therefore… read more

December 6, 2016

Auras

A MyEpilepsyTeam Member asked a question 💭
London, UK

Can deja vu be a sign of an aura or having one?

A MyEpilepsyTeam Member

It is. They are auras.

June 19, 2016
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