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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Does Anyone Else Get Depressed Listening To Other Family Members Talk About Their Perfect Happy Lives When You Don’t Have Any Of It?

By A MyEpilepsyTeam Member 76 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 146 answers

What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?

By A MyEpilepsyTeam Member 158 answers

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member 269 answers
12375 questions

What Would You Today, If Tomorrow Was Your Death Date?

A MyEpilepsyTeam Member asked a question 💭
Philadelphia, PA

I would party like it’s 1999.

A MyEpilepsyTeam Member

I don't and can't think that way, I always look to the future for a nice time, I find thinking about that is looking down, I always look up to the Lord God 🙏

August 24

This Is Important But Imberisasing To Me I Have A Problem With Bed Wetting I'm 28 Never Used To Happen Anybody Else Having This Problem ?

A MyEpilepsyTeam Member asked a question 💭
Rachel, WV

I'm tense when wake up, have wicked dreams, get a headaches, when I wake up, and I don't sleep all that well but when I do I crash out, and I sometimes wet myself its so imerirasing I'm finally opening up and spilling out my last dogo God rest his loving soul he jumped on top of me when I was having a really bad seizures and tried to attack a parimetic hope everyone has a great day

A MyEpilepsyTeam Member

Well Michael it's nothing to be ashamed of or to tell. Cause I still remember not that long ago when I used to do the same thing every night. That is a seizure in your sleep.

May 17

Does Anyone Ever Have A Seizure Out Of No Where In Front Of A Family Member

A MyEpilepsyTeam Member asked a question 💭
Biddeford, ME

I just had a seizure in front of my aunt and her husband out of no where it was all caused by a firetruck and every time you have one do you apologize to everyone for having it

A MyEpilepsyTeam Member

Hang in there and try and stay,

August 15

My Husband And Oldest Son Accused Me Of Complaining Too Much. Maybe I Am. When I Found Out About The High Blood Pressure With Seizures Well.

A MyEpilepsyTeam Member asked a question 💭
MCCORMICK, SC

I am tired of feeling like I have not did anything in my life but complain. Yes, I get depressed and feel like I can't do anything right. Now I am scared that high blood pressure has been added and some kind of constipation problems that I am due to see a specialist for next week. My son informed me that if it was not for my husband, I would be in a home by now. He doesn't realize before he was even born, I wanted to stay in one. I was tired of the abuse at home that I ended by my own father… read more

A MyEpilepsyTeam Member

Nada, do you believe in supplements? I hav ebeen taking them since I was 5 years old. So I know that if you are low in magnesium you can get headaches. Surprise you Mum with a bottle of Magnesium… read more

April 1

Keppra + B6

A MyEpilepsyTeam Member asked a question 💭
Brisbane, AU

Hey everyone,
To anyone here who currently takes Keppra with B6 what has it been like when it comes to the side effects? Has the B6 helped?
And if it has gone well, what was it like (if you have done it) when your dosage increased while taking the B6.
Thanks.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I wonder why they advised it like that? Normally they say take it in the morning combined with fluids, so it filters through.

July 6

Do You Think About People Who You Grew Up With Or Reminisce About Them,

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

I last night was thinking about people who I went to school, teachers and neighbors, my bosses etc, does that happen to you once in a while?

A MyEpilepsyTeam Member

I’m still in contact with a few of them

May 9

What Do You Think About Soda Pop Since You Started Drinking It, And Do You Drink It On A Periodic Basis Weekly?

A MyEpilepsyTeam Member asked a question 💭
Lakewood, CO

I was asked by step son and he said I drink regularly during the day a few drinks, I asked my doc when I seen her and she gave me her opinion on it, just curious what is your opinion on the question here?

A MyEpilepsyTeam Member

I never noticed the change

February 25

Tremors Medication

A MyEpilepsyTeam Member asked a question 💭
Bulgaria

Does anyone get hand tremors from epilepsy medication?
If any, which ones and how do I handle this problem

A MyEpilepsyTeam Member

yes i do when i start to have a seizure of any kind on my right hand is where it begins

March 8

Has Any One Ever Made You Feel Like You Need Them?. That Cause We Have Epilepsy We Can't Be Independent.

A MyEpilepsyTeam Member asked a question 💭
Kansas City, MO

Sometimes I have to raise my voice and let them know, I got this , I'ma go M.I.A after holidays cuss people think I need them !, Show em better than I can tell em .

A MyEpilepsyTeam Member

I depend on myself all the time. But I always need my family I count on them to help me out when I need it the most.

February 28

Headaches/Migrains

A MyEpilepsyTeam Member asked a question 💭
Brisbane, AU

To anyone who regularly gets headaches do you take anything for them or do you just let it run its course until it's gone away?

The main reason I bring this up is, normally I would just take paracetamol for it and it is gone away but it still lasts 6 hrs+.
So my point is how would you work out the base time for these headaches if you were to just let them run their course until they go away?

A MyEpilepsyTeam Member

tylenol

December 16, 2023
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