Questions & Answers

I’m sooooo sleepy and in a brain fog since taking Klonopin in addition to my Lamictal and Trileptal.
How long does it take for these side effects to go away. I feel like I’m walking through jello.

Apologies if this has already been asked. But does anyone get upset about how people with epilepsy are portrayed in tv programmes and films. I watched something (not going to name) and found it a bit upsetting. I know it has to be shown in the media but it needs to be accurate and the help should be shown. It should be shown that having epilepsy is not all bad news.

I've had juvenile myoclonoic epilepsy for about 4 years now and have only had 2 grand mal seizures. I take 200 mg of lamotrigine daily, but was previously on 1250 mg of valproic acid. When I was first diagnosed, my neurologist said she'd only recommend having 2 drinks max. I'm in university right now and the temptation to drink is very high. I have been getting pretty drunk going out partying, including nights where i have about 13 drinks (I'm 200 lbs). I have been fine in the morning… read more

What do you do to pass the time? Maybe you are unable to drive and stuck at home.
Do you find it keeps your spirits up.?
What's your hobby?

I always seem to have some sort of headache all the time. Sometimes its barely there. I also have trouble pronouncing words sometimes and just feel like im not really there in the moment. Its creepy. Its like im dissociating. When im explaining something to somebody i also sometimes forget what i was talking about and zone out for a couple seconds, then i cant seem to remember what i was talking about. It also happens when other people are talking to me. Its like i cant comprehend what they are… read more

Does anybody feel overwhelmined by epilepsy and outsiders NOT aweare of so many different types of seizures

The FDA is suppose to be approving this new medication. From what I read there is suppose to be cannabis in this. Is that true or is it a synthetic version of cannabis. If anyone has an appt, maybe bring it up and get some info off it. I would like to know more about this. I’ll even try and remember when I have my next appt. Thank you

Epilepsy and its associated problems is serious and needs each sufferer to support one another. So what do people want from this site? advice, guidance, someone to share your thoughts with, a shoulder to cry on. In my opinion it is certainly not a dating site!

My son was recently diagnosed with Absence Seizures in which hid neurologist called them the true form of Grand Mal seizures that are hereditary. She said they usually start out as the small absence seizure of stare offs and eye fluttering, absence of awareness or unaware of anything happening during the spell. She explained to me that all people diagnosed with acute absence seizures will eventually endure full on grand Mal seizures with convulsions. Has anyone in the group been diagnosed… read more