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Head Rushes
I wonder if any of you have ever experienced a head rush
I really don't know how to describe it other than a head rush. I "hear" and "feel" something going into my brain then all of a sudden I'm seeing double or triple and I cannot speak.
This just happened to me about ten minutes ago while looking around this site
It happens to me on a regular basis. I never thought anything of it until today. I just wonder if this is a common occurrence with anyone.
Anyway, I have an appointment with my… read more
Those are what I have. I call them simple partial seizures. The dizziness lasts for anywhere from 30 to 45 seconds, and you can't speak or even think clearly for another 2 minutes. But you know who… read more
Epilepsy Clinic
Hi Everyone,
Please help?
I haven't seen a Neurologist or Specialist for over 30 years, and relied on a GP and Government Hospital for medication in South Africa.
Since having re-located, I requested review and now have an appointment in an Epilepsy Clinic in July.
Obviously, I don't know what to expect and have so many questions; what worries me most is a change of medication when I am so far under control (as far as I'm concerned).I've never had an MRI scan done, and no EEG for over 30… read more
@A MyEpilepsyTeam Member... Thank you. Having a neurologist that listens is hard to find. I had to ask for a 2nd opinion as my prior neurologist was arrogant and just would not accept what my feelings… read more
Do You Struggle With Your MOTOR SKILLS?
It can even very frustrating when filling out forms . For example . I have to go to a new clinic , because I moved and my old clinic is too far. When going to new clinic we have to fill out a information form , so they have an idea of whether or not we are on meds, health related issues, our name and ect. Most of the time these form may be at least 2 pages . I can’t even get the form done before the nurse calls me into the back for my appointment. The average person who doesn’t have my disorder… read more
I am not able to come to grips with it yet I know it's good for anxiety but that's all
What's The Biggest Obstacle You Faced?
I have been very independant all my life wanting to do everything on my own even 22 years after my diagnosis I'm still like this, and it's hard for me to let others who actually want to help me, help me. I push people away. my best friends and greatest support fight back and refuse to let me push them away. but even though I know (now) i cant do this alone and i do have to rely on others i still find myself fighting this struggle to go at it alone.
Thank you so much. I have been throwing two cumm in my life.
I Have Questions That Hopefully Some Of You.
What is the difference between an aura and a petit seizure. When I have an aura in which can last for hours I feel like a riot is going on inside me. People have told me to say something. I don't always have a seizure. I don't want to be the boy that cried wolf all the time.
Thank you everyone for your patience with me. I am new on this on line and I don't know what I'm doing all the time.
Hope and pray everyone has a great day.
Our neurologist signified auras-getting flushed, heart races,sometimes can't speak right, lip smacking or tongue thrusting as actually focal seizures. They're usually a sign you're going to have a… read more
Does Anyone Else Have Tingling Numbness And Weird Cramping That Hurts And Makes That Part That's Cramped Crimp Up Till It Stops?
Sometimes I get tingling numbness in my hands feets arms or legs and a hand or foot starts cramping and it hurts and I have to bend my fingers or toes in the opposite direction to get it to stop. Is this common for us or a different health issue?
Yes yes and yes what do you all do i am on 2 meds now
Does Anyone Else Feel Like Family Don't Always Understand
Unless they know you inside and out. They have been through it all with you. They won't understand. I am very close with my daughter and I totally understand that she goes through a lot. The family… read more
Certain Sounds/noises
I'm not sure, but I think certain sounds or noises can trigger my seizures. Does anyone else know if this can be?
when I was an adolescent I had an issue when I would hear the sound of a bass from a rock band, would send me into a seizure. It was the most oddest thing but as time passed that sound no longer… read more
Seizure Diary
Can anyone suggest a good seizure diary app compatible for iphone? Thanks
What I do is I put notes on my phone. This way I can find my notes and write them down when I see my doctor. My doctor can keep my notes in my file and have a record of what is going on in my head.
Weight Gain On Keppra
Has anyone experience a weight gain on @Keppra? I have gained almost 20 lbs in just 45 days. I also take Zoloft for depression and anxiety.
Yeah all's we can do is eat healthy and work out because if your able to drive and you wanna switch meds then you can't drive for 6 months .. hope this helps
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