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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Epilepsy Symptoms Keep You Up At Night?

By A MyEpilepsyTeam Member 222 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 146 answers

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 163 answers

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

By A MyEpilepsyTeam Member 90 answers
12380 questions

Are Any Of You Afraid To Live By Yourselves Because Of Your Seizures

A MyEpilepsyTeam Member asked a question 💭
TEXAS, TX

I'm only eighteen I'll be nineteen in two months And the last time I had a epilepsy seizure i was going to the bathroom at night and had busted my head open while in a seizure and luckily my sister was awake during the time But it makes me wonder what would have happened if i was by myself or if my sister wasn't up at the time.

A MyEpilepsyTeam Member

There’s no way I could live by myself having seizures. There would be no way for me to go to the store and get groceries. Plus, I’ve had seizures since I was in elementary school. I’m not allowed to… read more

September 14

Does Anyone Get Frustrated When People Joke About Your Short Term Memory Loss?

A MyEpilepsyTeam Member asked a question 💭
Murfreesboro, TN
A MyEpilepsyTeam Member

I try to be optimistic

September 3

Has Anybody Had A Absent Seizure By Them Themselves? Then Return Have People Come To Your Home And You Don't Feel Like Yourself?

A MyEpilepsyTeam Member asked a question 💭
Toledo, OH
A MyEpilepsyTeam Member

Yes, been there , done that

August 27

Medications And Seizures

A MyEpilepsyTeam Member asked a question 💭
Pittsboro, NC

How do you handle taking medications where seizures are a possible side effect? Sometimes it is just not avoidable.

A MyEpilepsyTeam Member

ok, storytime.... long ago (kid age) the other meds did nothing (no good but no bad). i switched to dilanten and depakote. immetediately i had clusters of seizures and had to get off of um asap. had… read more

August 11

Do Getting Headaches Part Of Having Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Caribou, ME

My boyfriend asked me to attend a concert with him. I am new to having this disease so I am learning about it. I have seizures that come on at anytime with or without triggers and have never been to one am not sure if it would trigger them due to lights. We both want me to attend but he understands why I'm hesitant he cares about my health. I don't want this disease to control my life but I don't want to do anything that will put me more at risk for an episode. Also is getting headaches part… read more

A MyEpilepsyTeam Member

Headaches is a very common thing with seizures. And going to a concert a recommendation bring an extra dose of medicine and keep in the shadow/dark it helps plus eat protein it stops and helps… read more

July 22

Anyone Have Nerve Pain? I Have Neurofibromas. Had Tumor Surgery To Remove Non Cancerous. Anyone Had This?

A MyEpilepsyTeam Member asked a question 💭
La Habra, CA
A MyEpilepsyTeam Member

Quinn16 my neurologist wants me to get another epidural shot which I did not continue.

August 4
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Before My Brain Surgeries, When I Was Having Seizures(sometimes, But Not All The Time), I Could Stop A Seizure Before It Happened.

A MyEpilepsyTeam Member asked a question 💭
Wayne, MI

Could anyone else do the same?

A MyEpilepsyTeam Member

Yes it is . It's a must in my life

July 5

Does Anyone Have Quick Sz That Repeat Themselves For An Hour?

A MyEpilepsyTeam Member asked a question 💭
Piedmont, CA
A MyEpilepsyTeam Member

I use to have multiple cluster seizures, that lasted over an hour . Sometimes they would happen through out part of the day. By the time they did stop , I would be exhausted. And fall asleep into the… read more

August 20

Explain What Triggers Your Seizures?

A MyEpilepsyTeam Member asked a question 💭
Conroe, TX

I'm interested to know if your triggers are similar to mine

M͟y͟ T͟r͟i͟g͟g͟e͟r͟s͟
-not enough rest
-Waking up too early
-Stressed
-Flashing lights
-Restless

A MyEpilepsyTeam Member

I Do & Did, On My Own Because I Know Myself, Mind & Body Over The Doctors, Etc. 💜💙💜

June 25

Had A Run Of 3 Focal Seizures After A Attending An Outdoor Festival. Does Exertion And Noisy Environment Trigger Anyone Else?

A MyEpilepsyTeam Member asked a question 💭
Seattle, WA
A MyEpilepsyTeam Member

It's correct a sudden or surprising change in actions can cause seizures. But the possibility of it happening to you may be easy, mild, or hard, possibility none, depending on how your epilepsy… read more

August 13
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