Questions & Answers

IDK if it's the medicine everyday (Lamotrigine, Lamotrigine ER, Topamax, Clobazam) or WHAT, but I have nightmares almost every single night. If it's not a nightmare, it's just very vivid, strange, and "real". I always wake up in a slight panic. Does anyone else have this problem?

i wonder... if we were raised differently or had seizures earlyer/later in live... is that inpacted our lives?

I developed a significant Learning Disability, possibly due to where the seizures came from. I could not do any math, and at 12 pay attention for over 15 minutes. A Tutor at home helped. When required to take math of any kind I was so stressed could not do any normal classes. Eventually my Neurologist had me take a full Neuropsych Workup. They determined I did not remember a task if given directions, and did not continue doing a task if I knew it. If that was the case, the chance of my getting… read more

I have lost so many friends (well for me it was a lot) because people just didn't know or understand how epilepsy affects my mental state and moods. Or maybe they just didn't want to. I don't know. I'm just a really lonely person that has lost so much. And I hate it.

This has been dwelling on my mind for years. I don't think it will ever stop. How often do you all work, or can you work? I have a job, but I have to call in many days because of seizures. So, I don't make much. Plus, last night, my boyfriend said that "I was like a roommate who pays less than half of the bills". We were arguing about my low libido (roommate). I guess he's just had enough. Either way, I feel bad about everything. I want to be able to work more. I want to make more money. I want… read more

Are there many people still using phenobarbital?

Working in a charity shop for 5 year's helped me gain confidence by meeting others who treated me with respect and never held having epilepsy against me.