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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 95 answers

Does Anyone Else Get Depressed Listening To Other Family Members Talk About Their Perfect Happy Lives When You Don’t Have Any Of It?

By A MyEpilepsyTeam Member 76 answers

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member 163 answers

Has Your Life Changed For The Positive Since Making Friends Here?

By A MyEpilepsyTeam Member 88 answers
12382 questions

Can You All Show Some Of Your Talents?

A MyEpilepsyTeam Member asked a question 💭
Fallon, NV

I've noticed we are some intelligent. Spiritual, artistic and poetic people on here can you all show me some stuff. I'm just in awe of us as a disabled people. I truly am shine peeps shine

A MyEpilepsyTeam Member

I used to be in bell choir in church.

June 14, 2023

What Is The Correct Time To Vent To Your Friends Here? Should You Make It Clear That You Are?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

I ask this one for several reasons. The first is for those who do not already realize that most friends are ready and willing for you to vent. The second is more important to changing my start of venting by letting friends understand that this is exactly what I am doing.

Finally, it is important to hear from friends who do not want to hear you vent (especially depending upon the topic) and might block you (the equivalent of Facebook's stop following a person's postings. Or they might even… read more

A MyEpilepsyTeam Member

I only trust my son his family and some friends only Not mom as she tells everyone that almost talk negitive bout me

April 22, 2023

I Think I Accidentally Blocked Someone.

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

It wasn't intentional. How can I correct this?

A MyEpilepsyTeam Member

Lol 😂

March 19, 2023

Anybody Else Bite Their Tongues Or Cheeks.

A MyEpilepsyTeam Member asked a question 💭
Fallon, NV

I find it way when I'm alone to tell I've had seizures.

A MyEpilepsyTeam Member

Biting the inside of cheek really hurts

September 20, 2023

Finding Friends

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

Someone on here mentioned wanting to locate old friends.
Have you tried Facebook or other social media sites?
My high school class has established such a site.
Through Facebook I was able to reestablish contact with the "boy" who used to live down the street
from me. I also re-met a cousin I hadn't seen since we were both 6 years old.
Give it a try. It's nice to contact old friends. (In my case really old LOL)
The best of luck to you. ❤️

A MyEpilepsyTeam Member

Francis2,
35 years? Wow! That's wonderful.

March 15, 2023

Are There Any Other Epileptics Who Have Never Had A Headache Before?

A MyEpilepsyTeam Member asked a question 💭
Kansas City, KS

I’m 41 years old and I’ve never had a headache. Is this because I have seizures instead?

A MyEpilepsyTeam Member

You’re very welcome Boron 😊

November 19, 2023

How Did You Realize When You Were Developing Siezures

A MyEpilepsyTeam Member asked a question 💭
New York, NY
A MyEpilepsyTeam Member

I was 15 yrs old and was at home and luckly mom was there at that time.

July 8

Does Any Else Get Aura Confusion?

A MyEpilepsyTeam Member asked a question 💭
Fallon, NV

I've been told I should be able to recognize my auras but to this day day I can't tell post seizure from pre seizure

A MyEpilepsyTeam Member

I only know i have very minor 5-8 sec. Seizures at night because of the EEG Cap.. There was a very minor one during the day. How the people at Parsonage Cottage ever thought I needed a Nurse at all… read more

February 2, 2023

Hey Folks. Having Major Struggles After My Last Seizure. Anyone Else Deal With Depression And Anxiety Weeks After Their Seizure?

A MyEpilepsyTeam Member asked a question 💭
West Milford, NJ

I recently had my third seizure at 29 years old. My first was a Febrile Seizure at age 5 or so. My second was around 22; I went to a music festival after barely sleeping, didn't eat, drank and smoked marijuana. Third was after a long night of drinking and poor sleep. Smoked marijuana and instantly went into one. I was diagnosed 2 weeks ago with IGE. I haven't started my Keppra yet as I've already been dealing with anxiety and depression for the last year or so. I haven't been able to have a… read more

A MyEpilepsyTeam Member

Love your honesty thanks for it

January 26, 2023

Seeing Some 1 Or Your Self Have A Sezure

A MyEpilepsyTeam Member asked a question 💭
England, AR

Since having epilepsy I've only seen a few people have a sezure on TV i watch some body yesterday on TV have a sezure I thought it was upsetting to the point I cry I wouldn't like to see myself shocking what we go through and our body's bless everyone ❣️ and stay positive strong and never ashamed let s all hope for a better 2023

A MyEpilepsyTeam Member

I have never seen a person have a seizure, but I have seen many dogs have seizures. It was disturbing, but I was able to help. I always got emotional, trying to put a catheter in through tears was… read more

January 13
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