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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 163 answers

What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?

By A MyEpilepsyTeam Member 158 answers

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 95 answers

How Does The Cold Affect Your Epilepsy?

By A MyEpilepsyTeam Member 184 answers
12441 questions

Does Anyone Take Keppra And Have Vivid Dreams And You Feel Like You Had A Seizure In Your Sleep Caused By The Dream

A MyEpilepsyTeam Member asked a question 💭
Quincy, IL
A MyEpilepsyTeam Member

It's dif per person, but I have my dreams now and then, I do have a few times of a couple good ones and I mean once in a while, I do also have the weird and strange too, I think it has to do with the… read more

September 24

Does Anyone Else Deal With Hair Loss?

A MyEpilepsyTeam Member asked a question 💭
Bixby, OK

I have very thin and blonde hair but I noticed since going back on seizure medication I have lost so much hair and it’s making me insecure. I don’t know if it’s stress, medicine, or both 😭

A MyEpilepsyTeam Member

I spoke to my doctor it’s definitely stress induced. I’ve been trying to reduce stress to avoid hair loss/ migraines.

October 19, 2023

Medical Marijuana

A MyEpilepsyTeam Member asked a question 💭
Hatfield, PA

Hello Everyone,

I would like to know if any of you use marijuana instead of medication. Do you feel stoned and unable to do your daily things? I was diagnosed with epilepsy November 2022. I have tried 5 different medications and now the Dr wants me to try another. I can not stand the way they make me feel!

Thank You,

Deana

A MyEpilepsyTeam Member

Yes, you have to get it from a medical Marijuana place that way they know what you need to not make you paranoid or in the couch not being able to get chores done.

March 12

Is It Good If The Doctor Is Allowing You To Make Your Own Med Decisions

A MyEpilepsyTeam Member asked a question 💭
Maspeth, NY

My pheno levels are 46.8 before taking it. I'm having NES, crying every now and then for no reason. Less awareness my left temperal lobe feels different. He says it never gets higher at any hour. That's the first. I'm confused and told him to speak to my old epileptologist (the one to see now) as north Carolina says he's like God when it comes to other doctors. What should I do? I told him to speak to the God but he's on vacation great

A MyEpilepsyTeam Member

I don't drink alcohol because my mother died from alcohol

July 22, 2023

Where's The Best Place Or Site To Get A Medical Bracelet?

A MyEpilepsyTeam Member asked a question 💭
Muskegon, MI

I just got back from my visit from my neurologist and he cleared me and had no issues or problems with me traveling or going on vacation or trips alone as long as I got a medical bracelet with my seizure information on it. I've never gotten one before so I don't know where the best place or site to get one would be

A MyEpilepsyTeam Member

I just got a medical bracelet from American medical. I may have spent more for not looking around but it was worth it as I was planning a long awaited trip and yeah my luck it feel though and that's… read more

July 6, 2023

Does Anyone Know From Where These Words Come?

A MyEpilepsyTeam Member asked a question 💭
Fallon, NV

Give me your tired your poor your huddled masses yearning to breathe free. The wretched refuse of your teeming shore. Send these your homeless your tempest tost to me I will lift my lamp to the golden door. Hint we as a country might be ignoring it.

A MyEpilepsyTeam Member

110 are amendments to the bill of rights not the federal constitution. Our constitution is the governing source to our well government ie how it should conducts itself. The Bill of Rights are the… read more

March 23, 2023

Why Do I Get Notifications About Posts?

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

I get notifications when someone posts, which is fine. However, I get information on those notifications telling me I can reply on there. Perhaps that portion of the text should be amended?
Thank you.

A MyEpilepsyTeam Member

Thanks for the hug,
Loren2. Hugs to you too.

March 30, 2023 (edited)

Have Anyone Else Loss A Job Or Had To Stop Going To School Because Of Your Seizures?

A MyEpilepsyTeam Member asked a question 💭
Dayton, OH

I know seizures can change life but how are we still supposed to go on in life when alot of people don't hire people with health problems. So college's are the same way? Why

A MyEpilepsyTeam Member

Stepped down. But gained something else.

April 23, 2023

I Have Been Seizure Free For About 6 Months. In The Last Few Weeks I Have Started Getting The Chills For No Reason.

A MyEpilepsyTeam Member asked a question 💭
Syracuse, NY

I didn't even think about it at first. Then I thought to ask my Neuro and she said yes, I was having seizures. Has anyone ever heard of this?
I am also having another thing, for lack of a better word, going on. My dr. says it is a seizure also. I've never had one like this before either. My body stiffens almost. I can feel it tighten and pull. Anyone ever heard of this kind either?

A MyEpilepsyTeam Member

I don't know much about migraines. What you are saying is interesting. I'm not sure though. Good luck, I hope you feel better.

March 30, 2023

Can't Believe That I Haven't Seen Or Asked This Yet. Wondering About Memory Loss After A Grand Mal?

A MyEpilepsyTeam Member asked a question 💭
Indianapolis, IN

So I got talking with another friend about our memory loss issues and suddenly I got to thinking back to when I first started to have my grands before I was on my meds and before they came up with one that would really tame them down. I'm sure like most people on here my grands were whoppers that would beat the crap out of me and leave me totally useless for at least a week. Two of the things that I remember the most was how bad it hurt to get up the stairs because of the pain in my calves and… read more

A MyEpilepsyTeam Member

Hell yes!!!! My original med (not sure if you are allowed to name drugs on page) is now available in time release. I begged to go back on this pill as cognitive side effects were not as strong as… read more

March 16, 2023
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