Questions & Answers

Like you're going to have a sezuire but nothing ever happens. Your taking you're meds on time and eating and staying hydrated and everything but still feel off in the head. Like you lost your equilibrium and you know something is off but you don't know what.

I ask because this is exactly what my neurologist told me today and explained. If you get overheated, then blood pressure rises and the symptom is feeling faint/light headed. When blood pressure gets too high, then a seizure can be triggered.

I do not care that he explains that heat and humidity do NOT directly trigger a seizure, because all that is significant to me that the seizure still happens. I have more seizures during the summer than the three other seasons combined. And climate… read more

You see people who make fun of people with grandmal seizures or use them in their pranks.
So how would you go about making them understand what its like to live with epilepsy and what its like in those moments? When i think about how i would go about i can honestly say I dont know and I dont know if i could ever make them understand because they dont walk in my shoes or anyone elses shoes with epilepsy

I have made a routine of taking my medications, however, when something disrupts that routine, I sometimes tend to forget to take my medication. How you found anything useful to help you remember take your medications?

Do you guys drive?

I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!

Yes! I take my morning Keppra with roasted almonds and go back to bed for at least an hour. I take my evening Keppra when I go to bed. It’s not exactly a 12 hour spread between dosages - but it works.

My experience with fatigue and epilepsy is that the causes are unique to each person.

When the weather is dull and cold I have had more seizures, but if its nice and sunny I find it gives me a boost to do more than I usually do.

When I feel a aura coming on I say " Get Lost " out loud, what makes me feel better, today I felt a seizure coming on I took deep breath said "Get Lost " leave me alone " it stopped the seizure occurring, but it did still scare me a bit.