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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?

By A MyEpilepsyTeam Member 158 answers

Are You Frustrated With Finding Effective Treatments For Epilepsy?

By A MyEpilepsyTeam Member 167 answers

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

By A MyEpilepsyTeam Member 91 answers

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member 269 answers
12458 questions

Since I Am Not The One Having The Actual Seizures I’m Curious To Know What You All Feel And See During Yours I Only Imagine

A MyEpilepsyTeam Member asked a question 💭
Albuquerque, NM

Like flashing lights or darkness is it equivalent to like having surgery without you actually knowing what is going on .. my son can’t tell me so maybe you all could clue me in please is their pain are your emotions all over the place my son can’t tell me cuz of his autism too

A MyEpilepsyTeam Member

I agree 💯, they never hurt me physically but emotionally that is different. I am in emotional shock for hours in the beginning but now I am more understanding of it.

May 3
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Why Do I Have To Sign In ?

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

Every time I reply to a member I have to enter my email address and password why?

A MyEpilepsyTeam Member

Now I have no problem clicking on to my team, Thanks for all your support.

May 7

Does Anyone Know What Its Suppposed To Feel Like Right Before You Have A Seizure? All Of Mine Have Been In My Sleep Except For The Last Two.

A MyEpilepsyTeam Member asked a question 💭
Lewisburg, TN
A MyEpilepsyTeam Member

With my seizures i start feeling a strange feeling in my left thumb that spreads through my hand and up my arm to my head. My body gets tense and jerks for a while then goes limp. But I have also… read more

April 17

How Are You?

A MyEpilepsyTeam Member asked a question 💭
Rochester, NH

I had a stroke when I was two yrs. Old. That’s when The Drs. Found out I had Epilepsy. I had seizures and had to change my medications a lot when I growing up. Four yrs. Ago I went to Dartmouth- Hitchcock and had Lazer brain surgery and now I’m seizure free.

A MyEpilepsyTeam Member

What a feeling! I wouldn't know what to do first. Congratulations 🎉 to you. I'm curious about some of the same questions as above. It sounds too good to be true. Can you drive? Ride a bike? Take care… read more

April 17
Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >

Does Anyone Else Have A Bad Few Days After A Seizure. I’m Sleepy The Following Day, Then I Go Into A Depression And Feel Afraid.

A MyEpilepsyTeam Member asked a question 💭
Derbyshire United Kingdom

My seizures are nocturnal

A MyEpilepsyTeam Member

💜

April 7

Have You Ever Watched A TV Show And For Some Reason It Made You Think Of Your Epilepsy

A MyEpilepsyTeam Member asked a question 💭
Long Beach, CA

Was binge watching Lucifer and all the episodes where he cuts off his wings made me think, epilepsy is just like those wings, won't go away with a fight and if you don't do what's right for your brain and body shit might just get a little demonically evil. Then saw the episode where he gets devil wings and that made me wish I had some wings like that, they looked cool 😂

A MyEpilepsyTeam Member

Good question! I have had that feeling about certain shows or books, but can't remember any of them. I sympathize with characters who have limitations for any reason.

July 13

Can An Ear Infection Have An Effect On Seizures?

A MyEpilepsyTeam Member asked a question 💭
Huntington Beach, CA

I have an ear infection and lately have been having more seizures. do you think there could be a connection?
I’ gonna ask the dr.

A MyEpilepsyTeam Member

Very interesting!!

March 23

Does Anyone Ever Get A Signal Before Having A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Conroe, TX

If so I would love to know what it is.

A MyEpilepsyTeam Member

When I was having seizures I would get an orrah and a strange taste in my mouth. Sometimes I would get a ringing in the ear. Now I get knumbness on the left side of my head where I had brain surgeryread more

March 19
Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >

Is Waking Up With A Bitten Cheek Or Tongue A Sign Of A Seizure@ Or Could It Be Something Else?

A MyEpilepsyTeam Member asked a question 💭
San Diego, CA

My son is on depakote f9r epilepsy. He has not had a siezure for 2 years

A MyEpilepsyTeam Member

Update: The Chelsea foundation helped us get an emfit for my sons bed (he is 17). If he has a night seizure at least 10 deco ds long it should alarm to wake us up. We have had it for about 6 mobths… read more

October 12

Has Anyone Ever Tried A Specific Diet Are Any Referred Diets From Anybody’s Nutritionist???? To Help With The Seizure’s

A MyEpilepsyTeam Member asked a question 💭
St Louis, MO
A MyEpilepsyTeam Member

I agree with that, amen

April 23
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