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Is It Normal For A Small Seizure To Wipe You Out For The Day?
It's hard, my brother will tell me to get out of my room yet he has no idea how much it takes for me to get up when I feel triggered or after having a focal. I have no energy and I fear I will lose… read more
The FDA Published This: Https://www.theepochtimes.com/health/fda-warning-drug-used-by-2-million-americans-has-fatal-side-effect-(Phone Number Can Only Be Seen By MyEpilepsyTeam Users)
WATCH OUT FOR THESE AED'S!
is this available somewhere I don’t have to sign up and login for?
Are You Concerned In Taking A Bath Or Shower With Your Condition ?
Having a shower seat does help Having a shower, one other thing I dislike about having a shower is feeling shut in with shower curtain all round the shower, cause I have claustrophobia, so the… read more
Is Anyone Allergic To Kepra? What Are Your Symptoms?
Fatigue was pretty severe the first few days after starting it. I would 'nap' until 1 or 2 in the afternoon. Then it started getting less and less
Epilepsy Versus Seizure Disorder
I've recently been "reclassified" with a seizure disorder instead of epilepsy. Why would that be? I also, I've found out recently I have Lupus as well as Sjogren's. What a heavy burden.
Njay do have some kind of advocate ? to help you with this Ericthom3
Anyone With A VNS, Had A Battery Replaced?
Cause I was told that the battery in my vagal nerve stimulator is low , anyone had a battery replacement?
Yes. I just had mine replaced last year. It is the same experience as getting the first one. It’s nothing bad at all. They do it really quick.
What Is Your Story On Being Diagnosed?
What is your story on being diagnosed am asking because I think I am on the other side of things with my co-worker I think I have seen hers and she is not diagnosed Her doctor told her she didn’t know what was wrong with her. I told her to see a neurologist and get a new doctor but I don’t think she will listen to me. My parents saw my first one and took me to the emergency room where they did blood work testing if I was on drugs each time and wasn’t on meds and had to sleep off effects of… read more
i dont have any as mine happened when i was a toddler lol
Briviact Medication Pricing
I have been on Briviact for about two and a half years. It has made a world of difference for me in both seizures and my anxiety. (I think the last med I was on was contributing, and I didn’t realize). I know it’s newer and there is no generic, but does anyone know of other ways to get savings? I have their brand prescription savings card, but it turns out that card is for a certain dollar amount. With my new insurance, I blow through that annual savings amount in two months. Other than samples… read more
Interesting how everyone is different. Briviact was my worst nightmare!
I’m Epileptic, I Have A Question About Mild Seizures
I know whenever I had/have a grand mal, but I never know when I have a mild unless someone is paying attention and knows a little about seizures. So how do you know when you have a mild seizure without anyone telling you???
I could also just be sitting in a chair staring at the world not having a faint idea something was going on unless somebody tells me.
How Long Does It Take Your Tongue To Heal. (Or At Least Feel Better)
Haven't really been able to eat since Thursday.
Had a seizure and bit my tongue. It looks like it has scalloped edges. Anyway it really hurts and I was wondering if anyone had any info on how long it takes to feel better.
Ouchie - yogurt, applesauce (Demon food), and really blended pot noodles are the best thigs to eat. Nothing you have to chew. And all the ice cream you can hold.
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