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Looking For Feedback On Corpus Callosotomy In Young Adults
My adult son has a long history of epilepsy but recently his generalized seizures have become more intense and frequent. He now experiences tonic & atonic both causing him to fall. It is so heart wrenching to see him suffer this way. We are currently trying new medication & looking into the keto diet & a corpus callosotomy is our last option.
I agree with you and your post, I have gen seizures and epilepsy, It's dif per person, but I would suggest asking about your? To the doctor who is treating him and from the medical field etc and go… read more
Does Anyone Know About The Surgery, Corpus Callosotomy. I
I was wondering the side effects from surgery, effectiveness and recovery time. Anything you can share is great. Do they help with dropping seizures?
In1998 , I had a Left Temporal Lobe surgery done to reduce my seizures and “MAYBE” become seizure free.
It helped reduce my seizures frequency from severe to mild and moderate seizures.it took… read more
To The 18 People Who List Corpus Callosotomy As A Treatment: Can You Please Share Your Experience With This Surgery?
I am new to this network and I see where 18 of 20276 people who include corpus callosotomy (CC) in their treatment. I would love to learn about anyone's experience with CC surgery. It has been recommended for my 14 yo son who has drug-resistant/refractory myoclonic astatic epilepsy (MAE or Doose Syndrome) since age 4. His seizures, which are generalized, have worsened significantly with the onset of puberty. The thought of major brain surgery and the potential side effects scare the heck out… read more
Age is not a factor. My son just had a corpus callosotomy and he's only 2 years old.
Should I Continue Seeking Treatment From An Epilepsy Level 4 Center?
Hi everyone, I wanted your thoughts about what your would do if you were in my situation. I moved about a year ago to Central California and have to find a new neurologist. My existing one from Southern California is good but he is too far away now. The dilemma I'm facing is whether or not I should bother going to an Epilepsy Level 4 Center in the Bay Area. I've already had surgery twice, and probably wouldn't go for third one even if there was an opportunity in hopes of controlling my seizures… read more
Kevin I black out when I have mine and can’t talk don’t know if it’s similar but always been on meds no surgery My doc isn’t the best but life goes on. Just got my meds adjusted hope it works
If You Had Resection Surgery Can You Answer These Please?
I got the majority of the "important" questions answered that i asked my docs. I just forgot to ask, how long it takes for the chunk of skull to heal that they cut? Do they use screws to hold it together? Can you feel the fact your skull has been cut or that there are screws(if there is screws)? If anyone has has a resection, do you know a rough estimate what the answers would be? I know i can always ask the day of surgery for more exact answers, i just kinda want to go into knowing ahead of… read more
Research on a reputable site like Mayo, Cleveland, John's Hopkins clinics. Put your questions on Google and choose what those sites offer. This will help you ask better questions as well
Also Gigi… read more
Does Anyone Have General Seizure Having Seizures In Both Sides Of Their Brain Rather Than Just 1 Side? Plus More Than 1 Type Of Seizure
This is a very good question since there are many parts to the brain. They are as follows: corpus callosum, temporal lobe, frontal lobe, amygdala, hippocampus, parietal lobe, and occipital lobe. I… read more
Anyone Preparing For College. Anyone Find Roadblocks When Trying To Implement Safety/care And SAP Plans?
The college appeared all on board for anything my son would require to safely live on campus. Now that school is about to start,we are getting the actual pushback which is we can only offer the basic Stay/Safe/side type help but NOt administer Emergency Seizure medicine as they dont want the school or a roommate to be liable. They would call campus security and then campus security would call the local EMT which would be too slow to render real help. Im wondering about others in this situation… read more
I hate to say that times have changed, but many communities have not all caught up. Many are still scared of us. This is a slow process this is not easy we have to be our biggest advocates and make… read more
What Has Been Your Experience With Surgery?
Every neurologist I have seen tells me I need surgery to control my seizures. I have temporal lobe epilepsy that causes complex partial seizures. I've been through four different medications and still do not have control over the seizures.
I don't know if my condition is progressing or if the medication is causing me problems, but either way, I have noticed that I have forgotten a lot of things and my thought process is slower than it used to be. It's driving me nuts. I used to be the top of my… read more
I know the feeling....Except my neurologists over the years were not saying the surgery aspect. But I have been thru 9 medications now. I'm taking 2 medications now. But have dealt with 9 over the… read more
As For Our Own Diets, Do You Keep Track Of Your Calories Periodically Or Not That Much, And Do You Think It Helps? Curious, More Below
I have been on my fasting diet for about 2 1/2 yrs now and lost 23 lbs, once in a while I'll go over, but try to stay within the calorie range I have tried to put with my diet, my opinion, what do you think? I plan on losing another 5 and half or 6 lbs and then readjust my diet, curious
I use to do that. However I need to start doing that again
Looking For A Good Neurologist At Methodist West Campus In Houston.
I don't know any ar the west Campus. I go down to the medical center and Dr Brandy Ma is great. Do not go to her associate though, Dr Amit Verma, I fired him years ago because he told me since he… read more
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