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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Epidiolex" in Q&A. To see all results and access other features, sign up for free.

I Would Like To Have My Son Try Epidolex For His Epilepsy

A MyEpilepsyTeam Member asked a question 💭
California City, CA

Hello, I was wondering if there is a way that I can have a doctor help my son so he can try epidolex, many seizure medications make him feel sick due to a genetic disorder he has, but a few neurologists I have asked often dismiss epidolex or say he doesn't have the type of seizure that it helps. thanks for reading this, my family and I greatly appreciate your time and concern.
Cece.

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Medical Marijuana and CBD for Epilepsy Read Article...
A MyEpilepsyTeam Member

CeCe
I have been on so many medications and AEDs for seizures. I was diagnosed at 7 and am now 71. I understand they were first testing Epidiolex with young children, and it did reduce frequenty and… read more

CBD Oils Vs. Epidiolex

A MyEpilepsyTeam Member asked a question 💭
Williamsburg, VA

My doctor has tried signing me up for the new Epidiolex CBD Oil. I have questions on these topics. Have any of you tried the new Epidiolex and haven't or had any seizures while taking this? What is the difference between this specific "Epidiolex" and other CBD Oils that could be offered?

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A MyEpilepsyTeam Member

Epidiolex is pure CBD Oil, no THC. I know what the dosage is exactly. My Neurologist or Epileptologist would not allow a CBD Oil bought from a store. We would not know how powerful it was, or what I… read more

Epidiolex Prescribed For Refractory Seizures Of Lennox-Gastaut/Dravet Syndrome + Tuberous Schlerosis, Yet Not Epileptics With Refractory

A MyEpilepsyTeam Member asked a question 💭
Calheta, Madeira (Portugal

Seizures (Mesial Tempoal Sclerosis)….why?!?!

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A MyEpilepsyTeam Member

I agree with you have posted and the epilepsy team post, I think it's dif per person, and we each are similar but not the same with the condition we have, but hang in there and try and stay pos, my… read more

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Has Anyone Tried Epidiolex The New CBD Med ?

A MyEpilepsyTeam Member asked a question 💭
Santa Monica, CA
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A MyEpilepsyTeam Member

Chris
I have been taking Briviact and Lamotragine. Epidiolex was available and my Doctor suggested it. The dosage was at first very small. We settled on is 2.5 ML, AM and PM. They would have liked me… read more

Epidiolex Effects?

A MyEpilepsyTeam Member asked a question 💭
Orlando, FL

Im starting Epidiolex tomorrow and i’m wondering what side effects some of you have experienced or how well the medicine worked for you

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A MyEpilepsyTeam Member

I'll pray for you as well, hang in there and try to stay pos, everyone else here also

Has Anyone Been Prescribed Cannabis Medication?

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

I know it can help with epilepsy, 23years ago my rollups fags was spiked with cannabis, and it helped control my seizures, even though I never knew it was in them, I found out I was seeing a drug addict, so I left him after a 4 week, relationship. But now I wish I could have it legally.

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A MyEpilepsyTeam Member

Actually I have not asked for it yet, next time I see them I will if I remember. Thanks, Take care.

Is It Possible To Shift From Allopathic Medicines Like Keppra Etc To CBD Oil Only?

A MyEpilepsyTeam Member asked a question 💭
Brampton, ON. Canada

I want to be treated my seizures by only CBD oil, as it is organic only, is it possible?

A MyEpilepsyTeam Member

I would not trust the CBD oil, because I do not know how much or what is in it. I have never used Marijuana. I did drink when I was in College, but only by nursing 2 drinks of Tom Collins for 4 months… read more

Has Epidiolex Made You Seizure Free?

A MyEpilepsyTeam Member asked a question 💭
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A MyEpilepsyTeam Member

Not on that med, but hang in there and try and stay pos

Does Marijuana Really Help Seizures

A MyEpilepsyTeam Member asked a question 💭
Browns Mills, NJ
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A MyEpilepsyTeam Member

It's helping me some. My doctor put it on it about year or so ago. It hasn't stopped the seizures. But, I do believe it's helping.

Epidiolex Has Anyone On This Forum Received And Tried Epidiolex CBD Oil ? Want To Hear About Your Expreince With It

A MyEpilepsyTeam Member asked a question 💭
Santa Monica, CA
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A MyEpilepsyTeam Member

I tried it once it last for about 7 to 8 months then my mouth started to get a nasty taste in my mouth every time I tuck it. I told my MD about it I stopped talking.